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sebastian

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Joined
Oct 11, 2007
Messages
19
Reason
Learn about ALS
Country
US
State
illinois
City
arlington heights
I was diagnosed around 1 year ago. I decided to try everything I can think of. Here is the list of what I have tried so far. 2 IVIG treatments, IV ceftriaxone, Lithium Carbonate,prednisone,lyrica. Now I am going to International Stem Cell Institute for my stem cell treatment. They will infuse placenta and umbilical cord tissue into me. I will keep everyone informed on the procedure and progress...

I also spoke to a scientist working on Als for over 8 years and they are so close to a treatment -maybe not a cure but treatment. Unfortunatelly FDA and certain rules here in the USA are preventing them from helping us. But that is a long story... Sebastian
 

sebastian

Member
Joined
Oct 11, 2007
Messages
19
Reason
Learn about ALS
Country
US
State
illinois
City
arlington heights
I was diagnosed around 1 year ago. I decided to try everything I can think of. Here is the list of what I have tried so far. 2 IVIG treatments, IV ceftriaxone, Lithium Carbonate,prednisone,lyrica. Now I am going to International Stem Cell Institute for my stem cell treatment. They will infuse placenta and umbilical cord tissue into me. I will keep everyone informed on the procedure and progress...I am also starting MMS therapy.

I also spoke to a scientist working on Als for over 8 years and they are so close to a treatment -maybe not a cure but treatment. Unfortunatelly FDA and certain rules here in the USA are preventing them from helping us. But that is a long story... Sebastian
 

katekath

Distinguished member
Joined
Oct 2, 2008
Messages
148
Reason
CALS
Country
SGP
State
SG
City
SG
I just read about stem cell treatment recently for ALS, but there's just so much red tape for overcome. Looking forward to any updates you may have. :)
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Well Sebastian I hope it works for you. So far it hasn't worked for more than 3 months or so for anyone and they never report back when it fails. I hope you'll let us know, one way or the other.

AL.
 
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