ivig

  1. L

    Peak cough flow variation in ALS

    Hi guys, I posted a few times already here about my mother who has a possible diagnosis of ALS, but seronegative Myasthenia Gravis is also still being considered, but it cannot explain the hyperreflexia of her legs. So they think ALS and MG or maybe cervical radiculopathy. She has atypical...
  2. T

    Undiagnosed with 'extensive' motor neuron damage in emg

    Hi everyone, I'm very grateful to reach out to the resources on this forum. I've read through the most read posts and have good cause for concern. I'm not sure what information to give you, I believe the most important is the EMG results. My first EMG in October showed extensive motor neuron...
  3. BlsdMama

    Glycine receptor antibody? Swallowing fluctuations?

    Anyone else been tested or positive? Curious. I'm positive and Mayo thought certainly a more rare variant of Stiff Person. However, thus far, have not responded to meds. My MND doc at our university thinks PLS. Mayo admitted this week that maybe MND is what it is afterall. But first we try...
  4. H

    Recently Diagnosed

    I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have...
  5. B

    A thank you and an update

    Just thought I'd say hi. I have MND and have been trying IVIG for the past 8-9 months. We just stopped it....9 months ago I had symptoms/EMG changes in only my right arm...now I have some subtle changes in my back and left hand (although I can't tell that there are any changes). I'm still...
  6. L

    Reversible breathing issues with IVIG in ALS and MG

    Dear PALS, I've had an earlier thread regarding my mother, who's diagnosis is still uncertain. Both Laurie and Karen were very helpful. A short intro: My mother is a very complex case and has shortness of breath, orthopnea, loss of strength in upper arms and some atrophy of the deltoid...
  7. A

    Trial of IVIG

    My mom is 71. She has had one emg that said cipd but no other results showing inflammation. Two more emgs suggesting als. We finally met with a dr that felt ivig is worth a shot since some of her symptoms are atypical for als (burning and tingling in her legs past three years, hand symptoms...
  8. A

    Help with diagnosis

    My mother is having a very hard time getting a diagnosis. She is 71 years old. Tingling in her legs and fatigue with even one block of walking in her legs for the past three years. Two years ago she started having difficulty clasping a necklace and now there is some atrophy between her thumb...
  9. BlsdMama

    Can we discuss reflexes?

    I have a working diagnosis of PLS. I’m aware of the statistics. So far two clean EMGs. Had a Neurology appointment at my research hospital, not Mayo. Mayo has dx’d PLS as well but because a glycine receptor antibody was found a trial of IVIG for Stiff Persons was ordered. I’m about seven...
  10. H

    Seeking Guidance (Again)

    I had sought guidance in June and received helpful feedback. I have an update and would appreciate any thoughts. I am a 65-year-old male. In mid-2016, I started to have swallowing issues with food occasionally stuck in my throat. I also started to have intermittent issues where my speech...
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