About 6 weeks before my husband passed he experienced 3 or 4 full body spasms while we were sitting at the dinner table. For the last 2 weeks of Bob's life, he was having full body spasms at night. Then, about 5 days before he died ,he had spasms every hour or so. They were full body contractions and they were painful for him. Of course, in the last five days all the docs at the ALS Clinic were away so we were dealing on the phone with our GP and she was in touch with a neurologist (not ALS). They both thought Bob was having seizures so we tried anti-seizure meds and they didn't help so we took him off them as they were also making him very loopy and nobody wanted him to feel this way. He had said he didn't ever want to be on meds that made him feel anything other than himself. When the ALS Neurologist returned and called (finally), she said by my description they were spasms not seizures. No tongue biting, etc. She did say that it's common for PALS to have these "spasms" but not as many as what Bob went through. So, it's not unheard of. Sorry you're going through this. Yasmin.