Felicia,
While I understand your questions, please know that ALS is different for everyone. We all want a promise of time left, what to expect, how it will be, etc. Jim was a very rapid progressor, and his ALS was very unusually agressive. He went from first symptoms to diagnosis in a month, and lived only 359 days past his diagnosis. Please know, that is very atypical, and many survive many years.
One small piece of advice I can offer you, as best as you possibly can, don't think of the future. It will come as it comes. While you obviously have to plan for some things, such as accessibility, etc, I promise you, the thoughts are much worse than the reality. When Jim was first diagnosed, the idea of him being in a wheelchair was more than either of us could bear. However, when he did need a wheelchair, it wasn't nearly as terrible as the thoughts of it were.
Enjoy your lives, your time together, treasure every small detail. Jim and I lived out many of our dreams in what was our final year, we took a 2 week trip to Jamaica, without the kids, and enjoyed a luxurious 5 star resort, we flew over the island in a helicopter, we went around the west coast in our RV, we wented a houseboat on Lake Mead for 2 weeks, we took a cruise, we spent every waking/sleeping moment together. Now, that wasn't unusual for us, we had a deep love for each other, and always enjoyed each others company. But there was something very tender, beautiful and loving about the knowing that our time was limited. Of course we cried too, but please, enjoy your lives, as the country song goes, live like you are dying. You won't regret a moment.
Andrea