He knows there is something wrong!

[momap53]

CJ, so sorry you have to deal with both ALS and FTD. It is sad that he's now aware of the FTD but I hope that this realization will help you in some way. You are one strong lady. Hang tuff, kiddo!

 

[Katie C]

So sorry CJ... but it might make things a bit easier too.... hang in there

 

[notgivnup]

CJ so sorrry. My prayers are also with you and your husband. You are one amazing lady!

 

[Mick n Ang]

CJ you really are "One tough cookie" and a reassurance that he is aware of something happening and hes still fighting it in his own way.
God bless you all xxx Ang

 

[KissJ]

God Bless! I'm so fearful of this! My husband had difficulty thinking of words. His doc only mentioned that some people have difficulty with thinking. I should have asked more, but didn't. My heart really goes out to you! What a monster this disease is! You have my prayers.

 

[brooksea]

Thank you all for your support!

Just to let you know, him knowing, doesn't change one thing. He just can't help it and I have to accept it.

I hope my posts will help others traveling this road.

 

[ruthiep]

I hate what you're going through CJ but I truly respect and appreciate your honesty and candor in discussing such a difficult situation! Once again, hugs being sent across the state line! Take care

Ruth

 

[retiredmus2010]

CJ so sorry hugs coming via the Shore ....... bit by bit our loved ones melt away from THIS DREADFUL DISEASE......
Hurry up researchers..... get going on TDP 43 and NFKBp65 PRESTO ...... America's best minds are being wasted, sucked away from the tightly held grip of caregivers who are powerless to abate the advancement........

How can the greatest baseball player in history be associated with motor neuron disease?

 

[hjlindley]

You are one tough cookie and my heart goes out to you. One day at a time, and we are all here for you.

 

[laurel]

CJ I keep reading that we all think you are a "tough cookie". From reading your posts over the years, I don't have that image of you. I think you are tender soul who is torn apart by this awful disease. I think you try to make the best of things and have a good sense of humour and a way with words, but I just don't think you are tough in any sense. Don't know why I had to write this, but I just wanted to. Hugs to you.
Laurel

 

[cervus]

Thinking of you, CJ. Yasmin

 

[brooksea]

Laurel, I cried a bucket of tears upon seeing your post! You can clearly see right through me!

 

[laurel]

I didn't want to make you cry,but the tears are good to release some of that "I have to be strong" for my husband and my son. As a nurse, I sort of relate to how you handle things CJ. I have always been seen as competent and able to handle things, but many a time after working a horrendous night shift I would come home and pour a bowl of cornflakes and drink about 4 ounces of scotch while eating those cornflakes--trying to obliterate the stinking reality of life. But you are living that stinking reality and I was just a visitor. Love and hugs.
Laurel

 

[apoohone]

My wife Janice passed on 10 /02 / 11 .She had ALS FTD .First diagnosed August 2009 . I'm so greatful for these articles on FTD . She had a lot of anger near the end but my family thought it was associated with ALS .Not FTD . Wish I knew about FTD while she was still living . We know the anger was not depression .After you live with your loved one for 44 years you just know when something is not right .Wwe miss her soooo much . Love you all