Thanks in advance for your input!
So now, I'm paying a private trainer to work with me to keep my strength and mobility as good as it can be. But I can barely walk now. Going to the gym and moving from machine to machine with my walker is torture. I can still use my walker (rollator) around...
Hi all! It's been awhile since I've posted.
My husband was diagnosed with ALS-FTD in October 2014. He is definitely weaker in body and mind, week by week!
He presented bulbar ALS and personality changes FTD, before a thousand other symptoms kicked in. He just started using a walker when we go...
Hello All, I’ve been lurking on these pages for some time now and feel I should post. My mom was diagnosed with ALS in January of this year. For her, it started out a few years ago as a normal jog one morning. By the middle of her run something was wrong with her left leg, she couldn’t lift...
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Hello! I've been poking around the forum for a few months now and I think it is time for me to face facts.
About 18 months ago I started having problems with my balance. I didn't fall but stumbled and couldn't take my eyes off the floor as I walked through crowds. By the time I saw my GP a few...
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Sorry I stole that from someone else's post but I couldn't think of a better description of what I wanted to ask. I was diagnosed in January 2014. I quit working in July. Once I quit working, I start spending more more time at home either sitting in the chair or laying down in bed using my iPad...
My mom passed away on December 21st. She was going on day 13 of no tube feedings. I haven't been able to come back to the forum for a while, and I apologize for that. I guess I've been trying to make sense of the last 4 difficult months of her life, and I'm still as confused as ever. She...
For five years we worried about ALS. About how it would end. My husband of thirty nine years passed on Thursday the 16. I never posted a lot because his was so slow...even the newbies seemed worse than he was. He used a bipap at night. A walker to walk. He was just beginning to have voice...
Good news first, breathing still normal, high 90s
Bad news: fasics now noticeable in tongue which has me really scared.
Weakness in left leg and arm increasing but still can get around with walker. I asked about wheelchair referral since I've read about how long that can take. They gave me...
For the past 8 months my husband and I have planned to visit friends in Singapore, Cambodia, and Western Australia. MG’s PLS has progressed. He is walker dependent and extremely slow, and has resisted getting a wheelchair. He can eat but swallowing is slow. His speech varies but has been...
My hubby for the last few days has started to get puffy legs with his skin feeling tight, he is just starting on his third packet of riluzol, could this be a side effect of the riluzol?
He is still mobile on his legs with the help of his walker.
Thanks, love Gem