TGB1
Distinguished member
- Joined
- Mar 23, 2013
- Messages
- 197
- Reason
- Lost a loved one
- Diagnosis
- 12/2012
- Country
- US
- State
- PA
- City
- Pittsburgh
My mom passed away on December 21st. She was going on day 13 of no tube feedings. I haven't been able to come back to the forum for a while, and I apologize for that. I guess I've been trying to make sense of the last 4 difficult months of her life, and I'm still as confused as ever. She was diagnosed almost exactly 2 years ago with bulbar-onset, got a peg tube almost immediately and was still getting around with her rolling walker until this past August, when she fell and broke her hip. She had a hip replacement, went to a nursing home for rehab, and never came home again. She had been getting more and more confused before her fall (she was 87), and between the fall and the general anesthesia, she never came back mentally to where she had been. The last 4 mos have been spent with her moaning nearly constantly, and confused even though I was with her every day. She didn't have any breathing problems that were apparent, and I have a feeling if she hadn't broken her hip, she would still be here today. I'm sad about so many things, but I am so happy that she didn't have to live with this disease any longer. Thanks to all of you who listened and helped me, I don't think I could've gotten thru these last 2 years without this forum. I feel like I've been on a roller coaster ride thru hell. My life will never be the same. My mom would've been 88 next month - I am so relieved that she did not reach that birthday here on earth, suffering with this disgusting disease.
Trina
Trina
