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  • Hello Ralsip. I was diagnosed 4 1/2 years ago by two neurologists both from ALS Centers. I completely understand what you are going through since I have 3 younger children. What a shot to the gut. Anyways, I have not progressed at all since my initial diagnosis. At the urging of my mother I went to a Lyme literate doctor about an hour away from my home. He used a Lyme test from a lab called IGENEX. I was negative on all my other Lyme tests. I still have foot drop, but not too bad.

    About 6 months ago I talked to a newly diagnosed patient that lives about 2 hours from me. She was diagnosed by two neurologists, one from the Mayo Clinic who basically told her to go home and die.

    At my urging she went to my Lyme doctor and her symptoms are regressing. We both have the same ALS doctor at the Milwaukee clinic who is at a loss to tell us why this is happening, but says it is not Lyme.

    If you would like more information please do not hesitate to contact me at any time.
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