ralsip
Member
- Joined
- Jan 24, 2014
- Messages
- 16
- Reason
- PALS
- Diagnosis
- 01/2014
- Country
- US
- State
- Kentucky
- City
- Louisville
Sorry I stole that from someone else's post but I couldn't think of a better description of what I wanted to ask. I was diagnosed in January 2014. I quit working in July. Once I quit working, I start spending more more time at home either sitting in the chair or laying down in bed using my iPad or getting to the table to sit down and eat. I started using a cane in July and then a walker in November. I quit driving about six weeks ago. My hands are the worst, followed by my arms and then my legs. Now I'm starting to have trouble getting up out of chairs and even out of bed. I've also lost about 25 to 30 pounds since September and looking at my arms and legs most of it appears to be muscle. I feel like I'm getting to the point where I need to consider A lift chair, a power wheelchair and perhaps even a handicap accessible van. But I'm also concerned once I do that I will be even more sedentary than I am now and then I will progress even quicker and lose the ability to transfer to commode or to bed. Was curious what your experiences have been or what you've been told about needing to stay active or whether not doing so would speed up the muscle deterioration from lack of use. Thanks in advance for your thoughts.