clinics

ALS Canada is supporting a national clinical trial, which is aimed to confirm the effectiveness of lithium in slowing the progression of ALS in patients in the early stages of the disease. Patients may be included if they are within three years of their diagnosis and not already taking lithium...

IPLEX and the Telephone Game: The difficulty in separating myth from reality on the internet First Published on: 08 January 2009 Many of us remember 'the telephone game'. In this, a short story is started and then whispered to a second person, who then whispers it to a third and so on down the...

Well the waiting for my EMG test was hell. I had painted a picture in my mind that resulted in an ALS diagnosis. I was shaking while waiting in the doctors office. The test began with an ECV, this is a very uncomfortable procedure lots of jumping. The test was done on my right leg and my...

Hi. I've posted once before and received some wonderful answers so I am back again:) My Dad was diagnoseded with ALS on Dec. 2, 2008 after 3 months of difficulty speaking and 2 months of testing. The only noticeable symptom he has is the speech which varies from day to day (and actually...

Hi all, For the last 8 months I have had the following symptoms in order of appearance: 1) paresthesia in hands and feet (bilateral) 2) left face numb/tingly 3) Cold /tingly in various places of body 4) Foul taste in mouth (comes and goes) ... tingly/numb in mouth lips 5) Muscle weakness in...

Hi All, I am 36 years old with a partner who is 41 and has been diagnosed with ALS (upper limb onset) two weeks ago. He noticed weakness in left hand while playing bass approx 1 year ago and after a series of tests over the oncoming months he was officially diagnosed at the specialist ALS...

Hello, I am a friend of a wonderful woman named Nina. She is 51 and is in the process of possibly being diagnosed w/ALS. She contacted Mayo in Jax as they are one of two clinics in Fla. that specialize in ALS here in Fla. Unfortunately her appt is not until Dec. 29th. I am not sure if this is...

I have been reading posts on this site for the past week...I think it is so amazing the support everyone gives and receives. I think it is my turn to be the new member now. Had twitches for past 2-3 years...never any weakness...just normal twitches all over body. About two years ago my right...

:D I had my doubts about attending my first ALS clinic and voiced them in the New Member forum. I thought that since there was nothing the doctors could do for me it would not be worth the long drive and a day off work for hubby. A big Thank You goes out to Jennifer51, BethU and Al for your...

Hi Everyone, I used that title because that was my original post’s title. I was asked to please come back and report on test results, because I guess some people fly-in and post concerns, but then do not come back and say what results they had. For everyone like me, ABSOLUTELY...