clinics

  1. M

    Navigating the waiting list at clinics

    Hello Everyone! This is my first post at this site, though I have read many many of the links. First, I would just like to say thank you for such a helpful resource! Now, I'd like to add something that might be of benefit to someone out there who was referred to a clinic and has to wait 3-4...
  2. myooshka

    what to do?

    Hi to all, I'm at a loss for what to do and I need some advice. I have been ill for 16 months. Despite having, brisk reflexes, clonus that nerologists have commented on and said was from anxiety I have never been given an emg. I have been given mri, spinal tap,and nerve conduction studies. No...
  3. R

    Flu Shots (Indiana)

    The Indiana ALSA chapter is offering something new this year and I'm not sure that the word has gotten out, so here goes... On Thursday, November 1, they have their big annual meeting in Indy with Dr. Robert Pascuzzi speaking on the state of ALS (what's new in research and treatment and what's...
  4. T

    New Member same story

    Hello Yesterday I visited my third Neuro in less than a month. All three suggested without reservation that I am in what appears to be the early stages of ALS. The reason they are merely suggesting is that I am only effected in one limb. My EMG's both by two different Neuro Clinics were...
  5. J

    What do people think?

    The story so far: I am 34 years old, mother of two. In July last year I noticed a difference in the way I was walking on my left leg, in the foot area. I could still walk but was using other or compensating muscles to achieve the same walking style. I am an Australian living in Singapore. I saw...
  6. Lorie

    Congress Passes S.5 Stem Cell Research Enhancement Act

    First of all, I am not a supporter of Abortion. Being that I was blessed at the age of 30 with a beautiful healty baby girl. All the Doctors were telling me I couldn't have children. I also do not support Cloning. Thats why this Bill needs to be passed so there will be Federal regulations. I...
  7. J

    Michigan ALS Clinics?

    Hi All, I've been a lurker for several months now - finally posting for the first time. (by the way, thank you to Al, who must've noticed me around from time to time and sent a kind welcoming note to me at one point. It was so startling and kind, like a hand coming out of the dark - but I...
  8. T

    Can anyone help me

    I am from South Africa. My husband was diagnosed in Aug 2006.He was diagnosed by two neurologists.He was given a perscription for Rilutek,and that was it.Was not told to come back again. there are no Als clinics in the country,so he has not seen any Dr since. I read on the forums of people...
  9. M

    Clean EMGs/Clean Neuro Exams-ALS possible?

    Hi! I had posted my story before under different titles but the whole situation makes me still afraid. Maybe some of you could give me some additional advice or help as I am almost down with my nerves. Current situation: Ongoing bodywide twitching, constant sligtly increased cpk, feeling...
  10. L

    seeking info on PBP

    My husband just got diagnosed with PBP and we are trying to find out as much info as possible. Its very hard to understand how this came about and what caused it. He started slurring his words about 1yr ago but was under a lot of stress taking care of his dying mother. After she passed, we...
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