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aurore

New member
Joined
Nov 18, 2008
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5
Reason
Learn about ALS
Country
US
State
KY
City
Lexington
Hi. I've posted once before and received some wonderful answers so I am back again:) My Dad was diagnoseded with ALS on Dec. 2, 2008 after 3 months of difficulty speaking and 2 months of testing. The only noticeable symptom he has is the speech which varies from day to day (and actually during the day as well). EMG does show twitching in arms, one nerve is dead in the throat. We had to practically force the doctor to do a Lyme disease test and he completely discouned Myasthenia Gravis. After reading these blogs, I think that several tests were not done (no spinal tap for example). Maybe I am just in denial but I think the diagnosis is either wrong or at the very least rushed soo....

Dad has agreed to go for a second opinion and Cleveland and Mayo are the closest clinics to us. Does anyone have an opinion on which is better? Or is there one that is even better than those? I don't think distance is a problem and Dad has really really good insurance.

Thanks in advance!
 
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