Just wanted to know more about some Chinese specialized clinics for ALS, MS, etc. They claim to slow down or even stop the rate of damage by using a combination of acupuncture, decoctions, and massage. For example, there are several patient reports on Can anyone provide us with authentic...
Anyone who struggles with insurance issues or finding 'help' for this disease difficult. I highly recommend getting in touch with a MDA/ALS Chapter in you area or region.
I Registered with a Regional office in Eugene, Or., which covers my area here in N. Cal.
I was sent afew forms to...
Please, if you live in Iowa and have not already done so, contact your local Muscular Dystrophy Association office and sign up.
We are here to help you.
Our offices are in West Des Moines, Cedar Rapids, Cedar Falls & Davenport.
For those in Western Iowa, we also have an Omaha office.
We can...
When I was put on Hospice a few months ago I was not told that if I had any other medical emergency not related directly to ALS that Medicare would not pay for it.
I took myself off Hospice February 29, 2008, because I was told a visit to the ALS clinic would not be paid for while on Hospice...
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Hi
This is my first time so I hope I am doing this right.
I am an expat working in Beijing, China and I have just been DX with ALS by a local neurologist. Had all the tests etc. but health care here is not always firstrate so I made an appointment with another neurologist in Hong Kong for next...
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Thanks for letting me know how your visits to SA clinics are. My good news is that our appointment was moved up from July 11 to May 30! So we go in 2 weeks instead of 2 months. I told my husband we should be...
Hello All,
Just wondering if everyone attends an ALS clinic? My husband, Mike was diagnosed in Ocotber and we got a second opinion in December and after a muscle biopsy they agreed he had ALS. Do I need to be carrying him to a clinic or continue to use the doctor that confirmed. His onset is...
Hey guys
I was sent the lithium study by a fellow ALS forum member (Mark) and it certainly appears to be very well done. It was a double-blind study (with the exception of one physician who needed to know who was getting lithium to adjust levels if needed . . . but that physician did not...
re "When were you diagnosed with ALS?"
is there a formal process?
the 1st neuro i saw, back in '05, felt i had als but sent me for a 2nd opinion.
since then i've seen five, two of them lead als clinics.
#4, in nov '07 put me on riluzole and ordered a bunch of tests.
some of those tests didn't...
Most Neurologists will also do a complete blood work up checking for any unusual blood chemistry such as heavy metal poisoning, a spinal tap, MRI, and as a last resort a muscle Biopsy to check for nerve damage to the tissue.
If anyone else has more information about the various tests please...
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