choking

  1. N

    My daddy died in his sleep, at home

    And I wasn't there. I spent two months in Poland with him from August to mid October, and then had to come back to the US to work and to bring my kids back to their dad. My father begged me not to leave. He prayed for a quick death, and he prayed for an easy death. At least those two prayers...
  2. A

    my journey winding down

    now that the end approaches thought I'd share a few things,. This group has provided the best support. My five years have been filled with joy I never thought possible. I give credit to my attitude of not letting this beast get hold of my heart and soul. Also for my determination to follow...
  3. S

    Im confused about my EMG

    Hello Everyone, First I want to say thankyou to everyone on this forum that has been affected by this disease, whether they are a Pal, afamily member, or friend. Your strength makes you all gods amongst mere men. 2nd, if after reading my post, if you feel I shouldnt be here than tell me to...
  4. A

    Breathing, Swallowing issues

    Firstly I want to thank you all in advance for taking the time and effort to read this post I know time and effort are so incredibly valuable to PALS/CALS. I have taken the time to read the sticky’s and understand that I fall into the lowest possible risk group. To make this short I have...
  5. O

    Coughing has almost stopped

    I researched the forum for information, but couldn't find anything specific to this topic. My coughing and choking started prior to my diagnosis last October. It was chronic. I have been using the cough assist machine since this past April. Over the last couple of weeks, my coughing has...
  6. G

    My Story - input appreciated.

    Hello. I would like to start by stating my true admiration for all on this forum. You are all so courageous and inspiring. Thank you for sharing your valued thoughts and perspectives. I am very worried about having als. Here is my story. I have twitched intermittently for years. In April I...
  7. M

    Bulbar als?

    Reading through this forum I do feel a bit silly posting this, but thank you for anyone taking out any time to respond, it means more than you know. For about a month and a half I've been having issues swallowing. I swallow, and the food stops like partway down my throat, or at least some of it...
  8. M

    Reflux or what?

    The last week or so my PALS would have some coughing after finishing a gravity tube feeding. It seemed as if some formula was coming up by reflux and causing him to cough. It was brief and would resolve. I made sure he was at 45 degrees at least while receiving a feeding and for 45 minutes...
  9. K

    Please, talk to me

    Forgive me for posting, as I can no longer hold my worrying back, I do not mean to be "just another hypochondriac" visiting the forums. I am a 23 year old male, for about a month, I've felt a strange "heavy" feeling when trying to talk, as if Im struggling to get my words out. I've asked several...
  10. R

    What to do when PALS is choking?

    My wife has started choking more frequently — usually on liquids, but sometimes on grainy food. I don’t know what to do in theses cases. She continues to cough for a long time. We have used the cough assist with some success, but have not yet used the suction device. She gets a bit panicked and...
Top