choking

My husband has been diagnosed with ALS - this past month. He has both bulbar and limb onset. The bulbar symptoms are the worst...The panic in his eyes when he is choking is just awful. We are trying to do the best we can in coping with the Wicked Step Sister that has moved in and is trying to...

Today is day 3 since Dean had the Peg tube procedure. I think, I hope, I pray, that life is beginning to resume some assemblance of normal. He is still experiencing some pain/discomfort around the tube site but I think that is to be expected. He did have a good nights sleep, isn't running any...

Dean has finally decided to get the Peg. That news was several weeks ago. We met with the gastro doc and he explained the procedure then I explained that Dean has ALS and extra precaution was needed when they gave him the twilight etc. because of the swallowing/choking issues. He response...

hi i am back with another question? i am with a man that is my true love only tonight he made me very mad. he has been eating purieed food and liquids dont even make it down. he is choking even on the food we put threw the kitchen ninja. so again tonight i brought it up once more about the...

Hello all, I've posted here once before about my symptoms and the background of why I came to this board, but basically I've got a number of issues going on that my neurologist is working to diagnose. After my pulminary exam, I was told that my diaphram muscle strength is "below normal, but...

Im new to this blog! My father may have ALS or a form of MND. It started with slurred speech about three months ago believing he had a stroke we went to the hospital. They first said frontal lobe syndrome because of some brain damage visible on the mri from 40 years ago. However, the speech...

Hello, I have just found this forum and I am hoping for some advice based on all the experience out there. Apologies for the lengthy post.... My husband, who is 45, fit and well and, by the way not a worrier about health issues, has had mild swallowing problems for just about a year and which...

Hi.. I'm 41....about 6 months ago i started noticing that my hands felt weak..mostly on my left side...sometimes usually when my hands were cold...or if i held them in a certain way..i would get a spasm in my left hand..it would feel achy during the spasm but not hugely painful...then my right...

I've mentioned before that my PALS chokes when he eats and is still refusing the tube. My question is this. How do others here handle going out to lunch, dinner etc. with family, friends when your PALS cannot eat? Do you get them a tea, coffee or order a meal that will be un-eaten? When we...

hey all, im new to this forum and just have popped by for help, advice or opinion My mom has been diagnosed with ALS approximately a year ago, prior to that she had many symptoms but we assumed it was from a stroke she apparently suffered month's before that, anyways health care where we are...