choking

  1. H

    Questions about a tracheostomy

    I just wanted to ask any users here how it is to have a tracheostomy. I have a feeding tube and while it is a massive improvement to choking, it is a big commitment. The tube site needs to be managed and there are going to be complications (Granulation tissue, pain, leakage and infectsions)...
  2. T

    Dysphagia for months

    After er visits and ENT specialist twice , possibility of gerd being cause is possible but unlikely. It's literally been 6 months, started as lump and tight throat, now its more of not even being able to feel the food once my food leaves my mouth and feels as though my tongue isn't pushing food...
  3. P

    Considering a second opinion

    Hello, Gender: Male Age: 26 Family History of ALS: None to my knowledge I've read through the sticky at the top of the page, and i'm pretty sure I don't have ALS. I've been having issues for the past 5 months and today I've just visited a neurologist who told me that I don't have ALS. The exam...
  4. A

    choking spells and bipap

    this is happening more frequently. Our strategy is to remove bipap, it makes it impossible for me to clear anything from throat, and tip my chair forward until we can spit out or suction the saliva and gunk. Laurie wrote this on another thread. ote: If someone is gasping for air on an ongoing...
  5. M

    My Wife

    Firstly, thank you for the opportunity to ask questions even with you all being busy battling ALS. My heart goes out to you all. I have also read the stickies and I want to stress at the very beginning that I am not looking for a diagnosis here (only doctor can do that) and I am also not an...
  6. I

    rilutek - stomach, throat, skin

    I've read through several posts here about Rilutek. Just adding my experience. Been on it for over a year. I have had stomach bloating for many years. The Rilutek has seemed to make this worse. Experience what feels like an obstruction in my lower throat... just annoying really. Have...
  7. I

    Cannabinol through a feeding tube?

    As a help for leg pain and difficulty sleeping, I have turned to cannibus. Just got my card yesterday and have been trying to find a dispensary. I guess that finding one to provide 8:1 which is what the doctor suggested is going to be difficult. Aside from that, I have talked to a friend who...
  8. BlsdMama

    Glycine receptor antibody? Swallowing fluctuations?

    Anyone else been tested or positive? Curious. I'm positive and Mayo thought certainly a more rare variant of Stiff Person. However, thus far, have not responded to meds. My MND doc at our university thinks PLS. Mayo admitted this week that maybe MND is what it is afterall. But first we try...
  9. P

    Newbie

    Hello Everyone! This is my first post so bare with me. I'll spare everyone the details that took me from Aug. 2016 to now but as of now my Neurologist believes I may have PLS. I have had one MRI, 2 EMG's, several blood test and my next visit with her is Sept. 25th. I am seeing another...
  10. L

    Update on Whill model Ci PWC

    After 2-1/2 months my PALS is still happy with the Ci. Odometer shows 26.2 miles so far. She uses it on our daily 'walks', tried the Quantum one day and immediately went back to the Ci. Last month we had an incident when she started choking and needed to get back to the suction and cough...
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