choking

  1. L

    Update on Whill model Ci PWC

    After 2-1/2 months my PALS is still happy with the Ci. Odometer shows 26.2 miles so far. She uses it on our daily 'walks', tried the Quantum one day and immediately went back to the Ci. Last month we had an incident when she started choking and needed to get back to the suction and cough...
  2. S

    EMG Results & A little worrisome blood work

    Hello! I did my original post a while ago and since the I've done a couple of blood tests and an EMG. My intial symptoms were just body wide twitching around August in 2017 and my doctor ordered me to see a neurologist after a while. I did an EMG around the start of december in 2017 and they...
    • SyntheticHappiness
    • Thread
    • als choking emg emg results muscles neurologist swallow symptoms testing tests thumb twitching work worry wrist
    • Replies: 3
    • Forum: Could this be ALS?
  3. S

    Concerned about Bulbar symptoms and respiratory issues

    Hello Everyone, I have been on here before but tried to stay off, last time i logged on was in 2016. I will keep this short as i have been getting some new symptoms and need some advice. I have voice hoarseness issues which come and go but my voice been bad for almost 4 months especially my...
    • Sandylee
    • Thread
    • advice allergies als arm breathing bulbar bulbar symptoms choke choking concerned coughing emg food issues muscles pain respiratory speech swallowing symptoms testing tongue trouble swallowing twitches twitching voice weakness worried
    • Replies: 7
    • Forum: Could this be ALS?
  4. P

    Need advice

    My husband was diagnosed 3 weeks ago with ALS. He is declining very rapidly. Hospice is helping us. He is bedbound, unable to move any part of his body except his head. Urine is dark. They said his kidneys are the reason. Appetite is minimal. Speech is almost imperceptible. Coughing and...
  5. A

    Cannot wrap my head around this..

    Hello, first and foremost I'm not looking for a diagnosis. Maybe just some positivity! I am a 30 year old female who was living a very healthy, active, meaningful life. The kind of life where I have 2 beautiful children, a wonderful husband, am a former mail carrier (haven't been able to work...
    • AliB
    • Thread
    • ability back breathing breathing issues children choking clinical diagnosis emg family fatigue female lou gehrig's disease motor neuron disease muscle muscle twitching neurologist neurology slurred speech speech speech therapy story tests twitching vitamin d weakness
    • Replies: 3
    • Forum: Could this be ALS?
  6. N

    my dad got his peg!

    My dad has his peg placed yesterday. He was already week and losing weight and choking so badly - for hours, every single day.... At first I was so happy and relieved.... No more choking, and hopefully he'll become stronger eventually. And it was a miracle he decided that peg was a way to...
    • NotMyDad
    • Thread
    • back choking dad dry mouth eyes feeding food heart hours peg problems saliva suction test
    • Replies: 21
    • Forum: Current caregivers
  7. N

    my dad is tortured with saliva/mucus - need advice...

    He wakes up in the middle of the night choking on saliva and nothing helps. I mean - the only thing he tries is cough it out, and of course this doesn't help. His doctor - an anestesiologist with no experience with bulbar ALS, doesn't have any advice. My dad suffers so much he now often says he...
  8. Nuts

    Venting tomorrow---which will surely cause more venting

    I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...
    • Nuts
    • Thread
    • back bed burning choking decline diet eating food headache hours muscles night pain pneumonia problem progression reading research shaking sleep stupid venting worry
    • Replies: 137
    • Forum: Current caregivers
  9. Nuts

    Silent Aspiration

    We are four years in---why had I not heard of silent aspiration before today? Between November and January, hubby went through three rounds of pneumonia and one case of flue. It's been tough, but he's doing better. He was explaining to the Speech Therapist that he went through weeks of...
  10. H

    Need some help on weight gain and stomach collapsing when I lie down

    Hello everyone. So a bit of background for me. I had some issues swallowing for over a year. I had an EMG in Oct 2017 that indicated diffuse denervation. I thought it was multiple sclerosis at first, then Kennedy disease then oculopharyngeal muscular dystrophy due to wishing it wasn't ALS and...
    • Hammerheadzed
    • Thread
    • advice als bed breathing bulbar bulbar als choking clinic constipation denervation diagnosis diet dysphagia emg food meals nausea neurologist oil problem progression sleep swallowing test wanted
    • Replies: 2
    • Forum: Newly diagnosed
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