snowman4217
New member
- Joined
- Aug 4, 2018
- Messages
- 3
- Reason
- Learn about ALS
- Country
- US
- State
- IL
- City
- Sheridan
Hello Everyone,
First I want to say thankyou to everyone on this forum that has been affected by this disease, whether they are a Pal, afamily member, or friend. Your strength makes you all gods amongst mere men.
2nd, if after reading my post, if you feel I shouldnt be here than tell me to get the hell out of here and you will never see me again.
My ordeal began on April 18th of this year with what I thought was an upper GI episode. Went to ER, they found nothing. Next day I began having a tingling sensation in my face, and then isolated twitches throughout my body.
I had an mri of my brain and cervical spine. it showed no leasions nut did show a lot of stenosis, both spinal and neural faromin (sic).
I then began to have issues with swallowing, not choking but thinhs werent working right.
I then began to have breathing issues where it feels like im not getting enough air and my lungs just wont expand like they once did.
And now my hands, feet, and calves IMO show signs of atrophy
I was a poster of good health. Ate right, (we all cheat), exercised regularly, drank little, and dint smoke.
To this day, im still having all the above issues and now im having headaches and my breathing has me tonthe point where ive gone to the ER four times but they see nothing.
Today I had my EMG on my right arm, right leg, and tongue at Northwestern in Chicago. The Dr. said my emg looked good and didnt show any denervation.
1) The tongue EMG should rule out bulber als and therefore my breathing issues shouldnt be connected tl that clean test?
2) If the arm and leg emg are clean then everything else should be ok?
Ultimately, then all my issues could be attributed to my poor cervical issues?
Finally, whatever Im dealing with has made me far more compassionate towards my fellow man and made me appreciate just how precious our gift of life is.
Thank you all
Michael
First I want to say thankyou to everyone on this forum that has been affected by this disease, whether they are a Pal, afamily member, or friend. Your strength makes you all gods amongst mere men.
2nd, if after reading my post, if you feel I shouldnt be here than tell me to get the hell out of here and you will never see me again.
My ordeal began on April 18th of this year with what I thought was an upper GI episode. Went to ER, they found nothing. Next day I began having a tingling sensation in my face, and then isolated twitches throughout my body.
I had an mri of my brain and cervical spine. it showed no leasions nut did show a lot of stenosis, both spinal and neural faromin (sic).
I then began to have issues with swallowing, not choking but thinhs werent working right.
I then began to have breathing issues where it feels like im not getting enough air and my lungs just wont expand like they once did.
And now my hands, feet, and calves IMO show signs of atrophy
I was a poster of good health. Ate right, (we all cheat), exercised regularly, drank little, and dint smoke.
To this day, im still having all the above issues and now im having headaches and my breathing has me tonthe point where ive gone to the ER four times but they see nothing.
Today I had my EMG on my right arm, right leg, and tongue at Northwestern in Chicago. The Dr. said my emg looked good and didnt show any denervation.
1) The tongue EMG should rule out bulber als and therefore my breathing issues shouldnt be connected tl that clean test?
2) If the arm and leg emg are clean then everything else should be ok?
Ultimately, then all my issues could be attributed to my poor cervical issues?
Finally, whatever Im dealing with has made me far more compassionate towards my fellow man and made me appreciate just how precious our gift of life is.
Thank you all
Michael