AdBlock Detected

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience and to help support our community please take a moment to disable your AdBlocker.

Is this depression or something else

Status
Not open for further replies.

Roger4143

Forum Supporter
Member
Joined
Jul 1, 2017
Messages
21
Reason
Lost a loved one
Diagnosis
05/2017
Country
US
State
TX
My pals began a new behavior last week. She has been dealing with a lot of losses - speech, ability to swallow food, choking on pheglm etc. and started sleeping more and more. Sleeps 11 hours at night. Gets up and tries to drink a little coffee, goes to bathroom then gets back in bed. Family comes over and she visits for awhile then wants to go back to bed. No appetite, is apathetic about just about everything. Using the Trilogy more and FVC down to 24%. When questioned about how she feels and looking for symptoms, she just say she feels sick. No fever or other outward symptoms. Any help from the community on this! Thanks.
 

GregK

Extremely helpful member
Joined
Jan 29, 2013
Messages
2,775
Reason
PALS
Diagnosis
11/2012
Country
US
State
CO
My fvc%oe is lower 20's.

If I didn't use the Trilogy full time, I'd be exhausted within an hour.

I hope your "using the Trilogy more" is an understatement, otherwise I've a really good guess what the problem is....
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,237
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
In fairness, Greg, FVC does not always correlate with BiPAP hours/day needed as FVC is not always the best measure of respiratory function in PALS and pre-existing conditions, body type, etc. influence how the body adjusts to reduced air flow.

Also, the BiPAP settings themselves can be adjusted to work with the musculature that exists, or not...so, Roger, in addition to how many Trilogy hours your PALS is clocking, looking at the settings, which require at least occasional adjustment, would be another thought.

Best,
Laurie
 

Atsugi

Legendary member
Joined
Jan 11, 2011
Messages
5,173
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
Florida
Yes, Roger, I would call that depression. But of course, what to do?



Perhaps an anti-depressant would help, but your PALS would have to agree, and maybe she won't. It's a really hard place to be.


My Rx would be human touch. no need to talk about it, just touch her often.



I don't have any better advice than that.



Except for this: Don't forget about yourself. You need to keep your mental health intact as well. Good luck.
 
Status
Not open for further replies.
Top

AdBlock Detected

We get it, advertisements are annoying!

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience please take a moment to disable your AdBlocker.

We appreciate your understanding and cooperation!

I've Disabled AdBlock
No Thanks