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Reflection on My life

Im seeing a neuro on Saturday. I am scared. But i feel hopeful. I have to. I am a worrier by nature. I worry about this and that and i stresa myself Massively. And thats Not Good.

Convinced I have ALS

Hi my name is Ashley I'm a 26 year old registered nurse. I'm sorry I'm not quite sure how to navigate this site yet. About 3 months ago I started having sensory symptoms and was concerned about MS. Had a clean brain MRI and let it go and trusted my neuro. Starting the end of September my first symptom that worried me was a feeling of heaviness in my right arm and now my right leg that has only gotten worse over the weeks.

caring for my mom with als struggles

My mom was diagnosed with als in jan Jan 202014.she got her trac in Feb and went to nursing home till October. In there she lost all use if her legs and the atrafined. I took her home in october 2014 .I work full time and had a nursing company for 2 years and went through many nurses.some I found yelling at her nd holding her arms down.i got a camera in her room now to watch.now I have issues with them sleeping most of the day.well after complaining they quit on me I stead of watching the videos.

Daughter struggling with father's ALS

My dad was diagnosed with ALS about a year ago while I was living in out East and they were in the Midwest. I moved home to be close to family, help my mother (as she is helping with my dad and brother with Cerebral Palsy), and spend time with my dad while he was still in good health, or as good as can be. Now that I'm home, I have severely struggled as his condition and it's progression is much more obvious to me whereas living away from home I was more separated from the reality.

Could it be?

Hi all,
I'm currently beside myself and would like your opinion please. I have a strong family history of mnd. My father, grand father, auntie and cousin all died within 9-12wks of diagnosis. Very rapid progression....

Bulbar onset ALS

Hi, my husband was diagnosed with bulbar onset ALS in May 2016. I have noticed that he has started sneezing again and snoring. This may sound a silly question but do you think that is a good sign?  He has been doing his own Lunasin trial for the last 3 months.

Need a friend to chat with who has seen SOD1 first hand

Hi everyone! My name is Lorraine. This is my first time posting or finding this forum. I'm going to be honest, I'm depressed. I could really use a friend, someone who has seen SOD1 first hand. Maybe a caregiver, who has also lost a family member. 

A little about me... I'm 30, and SOD1 runs in my family. The most recent loss was about 7 months ago. 

My personal email is lorrainepacy@gmail.com 

Understanding EMG Test

I got my test back and was wondering if I could get some help understanding some of the results:

Sensory conduction studies: Right and left sural latencies show no response

Late responses: Right and Left H-reflex latencies show no response

I had the test done because I was involved in a MVA and injured my neck and lower back.

Still in denial?

I just was diagnosed with progressive bulbar palsy August 2016 although I've been having problems with my speech since maybe November 2015. My speech is getting worse, have weak facial muscles and tongue movement but otherwise feel fine. Penn medicine neurology said I have bulbar palsy and suggested I start rilutek that's it works pretty good for bulbar patients. I'm still hoping it's not ALS. Should I take the medicine? I don't know where to go from here. Any suggestions would be so welcome please!

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