Hearing Impairment in Amyotrophic Lateral Sclerosis

Greetings world,

I would like to open the floor for discussion on Hearing Impairment in ALS. I am a fourth year medical student rotating on Neurology with the Consultant Neurologist, Dr. D. Gilbert. I am currently following a patient managed by the service diagnosed with ALS.

My patient has severe hearing impairment and has compensated by learning to read lips. Has anyone seen or experienced this symptom?

Please help worried I'm having als symptoms

It's been about two months so far
I've been having numbness and weakness in my arms hands legs and shoulders
It all started really suddenly just one night everything went numb and After that it's been different

Scaring myself with als symptoms

Hey everyone, fist of all I'm not sure I'm writing this in the right place... I see "threads" where you can ask questions, but I couldn't find a "write thread" section so I'm guessing this is where I ask?

Ventilator Use Question

Ventilator Use
Question: when should I start using the ventilator during the day?
Data: Dec 2016 FVC 60%, and TLV 2.9 liters
Subjective: the past month I had to start napping on the ventilator, not just at night. The past week I gave up eating a bowl of puree for lunch and dinner and just have it through the MIC-key, it was exhausting to eat it all. My two naps during the day have gone from one hour to two or more hours, despite using the ventilator.

Twitching, emg, atrophy?

Hi everyone new here, however I've read posts for the last 7.5 months here and the bfs site. While I'm not looking for a doctor or expecting a diagnosis I am looking to share what I'm going thru at this point I'm back to square one. I have questions that I can't seem to find answers to do to maybe wording wrong in Google. So here goes.

Raising Money to End ALS in Springfield, MO

When it became apparent that more research and advocacy was needed to care for victims of Lou Gehrig’s disease, the ALS Association was founded in 1985. It is currently the only national non-profit organization fighting ALS on every front, including global research, providing assistance for people with ALS through their nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships.


I am a 23 year old male. Had surgery about 5 weeks ago and have been having very scary symptoms ever since. I have had weakness in left arm and fatigue in my legs. Calves get very sore when walking not even after that long. I also experience numbness and tingling in my left leg and frequently get fatigue pain in my arms. I have had some twitches and I cannot stop thinking this is ALS my vitamins are all good aside my D being a little low and I need to hear some feedback.


I have read a lot where they say it means nothing but that isn't true.  It is something. I have read many studies where people only present with fasciculations. Which means they do mean something. I would wait 6 months after fasciculations to get emg. I read from telemg website that two months is long enough to see neurogenic changes on emg but earlier may not show up. Also fasciculations are an abnormal occurrence in themselves.  After labs have been exhausted not explaining them it come down to ALS or BFS. Which is scary in itself.  So what are your chances.