Recommended and Registered ALS/MND Organisations

The following online resources have been organized to help you quickly find the ALS organisations you need to get in touch with. If you find one of our resources outdated, not working, or no longer useful please take a moment to notify us. Please contact us if you feel we are missing a resource that you would like to see added.

International ALS or MND Organisations

The Motor Neurone Disease Association

The Motor Neurone Disease (MND) Association is the only national organisation in England, Wales and Northern Ireland dedicated to the support of people with and those who care for them.

United Kingdom

The International Alliance of ALS/MND

International Alliance of ALS/MND Associations - The International Alliance is the peak body for national organisations who support people living with ALS/MND.


North American Nonprofit Organisations

Are you looking for support groups and ALS clinics in your local town or city in the United States?. We've made it easy to find them, please visit our American directory ALS clinics & support groups.

ALS Association ALS Association - The ALS Association is the only national not-for-profit health agency dedicated solely to the fight against ALS through research, patient and community services, public education, and advocacy.

Signature Event: In 2005, the ALS Associations “Walk to d'Feet ALS” held approximately 150 walks nationwide and raised over $10 million in support of cutting-edge research and patient services programs (USD - reported 2006).

Financial reports for United States of America
ALS Society of Canada ALS Society of Canada - mission is to fund research towards a cure for ALS and support provincial ALS Societies to provide quality care for those affected by ALS.

Signature Event: In 2005, the ALS Society of Canada's “Walk For ALS” raised over $1.7 million dollars for ALS Research and patient care services (CAD - reported 2006).

Financial reports for Canada
ALS Therapy Development Foundation ALS Therapy Development Foundation - The ALS Therapy Development Foundation is a nonprofit biotechnology company discovering treatments for patients alive today. Financial reports for United States of America
Ride For Life Ride For Life- mission is to raise public awareness of amyotrophic lateral sclerosis, assist research in finding a cure, support ALS patients and their familes, and provide the ALS community with the latest ALS related news and information.

Signature Event: During the past 7 years the “Ride For Life” has seen ALS patients ride their wheelchairs from Yankee Stadium to Washington DC - raising over 1 million dollars (USD - reported 2006).

  United States of America
Robert Packard Center for ALS Research at Johns Hopkins Robert Packard Center for ALS Research at Johns Hopkins - The Robert Packard Center for ALS Research is non-profit organization that operates out of the Johns Hopkins School of Medicine in Baltimore and focuses solely on finding effective treatments for ALS, and ultimately, a cure. To ensure progress, the Robert Packard Center recruits only scientists of recognized merit, minimizing the often lengthy grant process typical of academic medicine. This international group of investigators meets once a month to share ideas and discoveries, a collaborative process that greatly speeds up the progress of research and understanding of ALS. Annual reports for Robert Packard Center United States of America

Online Clinical Trial Resources - Provides regularly updated information about federally and privately supported clinical research in human volunteers. United States of America

Nonprofit Evaluators and Donating Recommendations

BBB Wise Giving Alliance - The BBB Wise Giving Alliance helps donors make informed giving decisions and advances high standards of conduct among organisations that solicit contributions from the public. United States of America

Submitting A Resource

If you have access to a useful resource concerning Lou Gehrig's Disease (ALS), motor neuron disease (MND) or primary lateral sclerosis please take a moment to submit it. We will review your submission for inclusion. Only registered organisations and verified resources will be published.