I entered a bloq a few days ago and have not heard anything bak. Nor, have I seen my blog posted. wondering if I'm doing it right?
I would like to open the floor for discussion on Hearing Impairment in ALS. I am a fourth year medical student rotating on Neurology with the Consultant Neurologist, Dr. D. Gilbert. I am currently following a patient managed by the service diagnosed with ALS.
My patient has severe hearing impairment and has compensated by learning to read lips. Has anyone seen or experienced this symptom?
It's been about two months so far
I've been having numbness and weakness in my arms hands legs and shoulders
It all started really suddenly just one night everything went numb and After that it's been different
Hey everyone, fist of all I'm not sure I'm writing this in the right place... I see "threads" where you can ask questions, but I couldn't find a "write thread" section so I'm guessing this is where I ask?
Question: when should I start using the ventilator during the day?
Data: Dec 2016 FVC 60%, and TLV 2.9 liters
Subjective: the past month I had to start napping on the ventilator, not just at night. The past week I gave up eating a bowl of puree for lunch and dinner and just have it through the MIC-key, it was exhausting to eat it all. My two naps during the day have gone from one hour to two or more hours, despite using the ventilator.
Hi everyone new here, however I've read posts for the last 7.5 months here and the bfs site. While I'm not looking for a doctor or expecting a diagnosis I am looking to share what I'm going thru at this point I'm back to square one. I have questions that I can't seem to find answers to do to maybe wording wrong in Google. So here goes.
When it became apparent that more research and advocacy was needed to care for victims of Lou Gehrig’s disease, the ALS Association was founded in 1985. It is currently the only national non-profit organization fighting ALS on every front, including global research, providing assistance for people with ALS through their nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships.
I am a 23 year old male. Had surgery about 5 weeks ago and have been having very scary symptoms ever since. I have had weakness in left arm and fatigue in my legs. Calves get very sore when walking not even after that long. I also experience numbness and tingling in my left leg and frequently get fatigue pain in my arms. I have had some twitches and I cannot stop thinking this is ALS my vitamins are all good aside my D being a little low and I need to hear some feedback.
Hi, I just found this site today and am glad to have found you.