My doctor is working on getting me a Trilogy machine. Right now I have a Bypap. I have a tracheotomy and was wondering what others think about the Trilogy from what I am reading is very good. From what I understand from my doctors nurse it will better benefit me than a Bypap. Is there any difference on the function of a Trilogy vs Bypap. Thank you
I have never blogged before, and started this by mistake, but I will try and see if it is cathartic. My wife is now taking anti-anxiety meds, since she was having trouble breathing and the hospice nurse recommended it. I don't know whether it is connected, since the time was coming anyway, but as she started taking the meds she lost ability to support her weight on her legs.
My wife, a professor and classical archeologist, had her first symptoms of ALS 2 years ago. The official diagnosis came a year ago June. Her first symptoms were in her legs, and the disease has progressed rapidly. She now has essentially no control over any limbs, cannot turn herself over, etc. Her first symptoms of speech slurring started about 4 months ago, and now she is almost impossible for anyone other than me or her daytime caregiver (I still work, as a computer science professor) to understand, and even we are having problems.
This is my very first forum I have ever done. I’ve debated for quite some time now about posting so here goes nothing.
My sister is unable to swallow liquids. She has a feeding tube. She is power wheel chair bound and is power lifted into bed. She is hosting our annual Halloween party with all of our help. She has asked to have a drink or two. We are all scared to death! This could be her last Halloween as she is progressing so quickly. Has anyone had a drink or two through the feeding tube. We try to do/give her anything she asks for but are unsure about this one. She drank socially prior to ALS and have not had a drink since. Mostly due to her progression and always trying to "catch up" with the disease.
Hi, everyone. Wow, a blog!! Never thought I would be a blogger, but I am going to try it out. Put my feelings, fears, and frustrations down in print.
My husband Steve has ALS/MND he was diagnosed in January 2015. Steve just had a tracheostomy and feeding tube fitted in May 2017. Now that has certainly changed a lot of things. Some for the better (his breathing) and much more for the worst. See I feel terrible writing that, but I have to be honest or there is no point writing anything.
I am a 20 year old female.
I am concerned I have ALS symptoms.
Hello, my name is Zach and I'm 17 years old. And for the past couple of days I have been experiencing muscle spasms in both my legs and arms now. Every time I look up muscle spasms als keeps popping up and I'm truly terrified. I know the chances are extremely low for people my age but there is still a chance and that idea terrified me. I have been concerned and I'm not very athletic I don't get outside in the sun much and I don't eat that healthy. All of my friends I have asked haven't had spasms that last this long.
This is my first time posting and would like some advice. I am terrified right now. About 5 weeks ago I noticed both legs in my hamstrings were really tight and then started feeling weak shortly after. I am able to walk and run but not as long as I was able to before. It feels like it is spreading a bit down my legs into my calves. I have since noticed twitching when I flex my ham strings. My anxiety level has been of the charts and all I can think about is I have ALS. I have been to Neuro and he told me it's probably anxiety.