Blog

Freaking out over my twiching

Hello ive been freaking out for about a week ive had non stop twiching all over my body but now its mostly just in my right hamstring non stop...I'm wondering if it to early to go to the doctor?

I don't know if this is right, but I need HELP

In January of 2015 I was pregnant and in nursing school I started having leg twitching. In January of 2016 I lost vision in my left eye for 45 seconds or so, had an MRI In which case they found 9 lesions, sent me to an MS specialist in march who said I did not have ms but that we would do a repeat MRI in July.. we did and the lesions were unchanged. He said he didnt think I had ms and that I most definitely didn't have mnd...  we would do another scan in July of 217 since then I've had widespread twitching. No atrophy and perceived weakness.

Living with ALS

Three Years

Today I celebrate the three-year anniversary of the worst day of my life. I was so scared that day, looking ahead to life in a wheelchair, giving up all independence, and being such a tremendous burden to my family. All of that happened, and there is no way to sugarcoat how difficult it has been for me, and all those close to me. But the weird part is, how much joy I have experienced as well on this roller coaster ride.

Newby

Help needed with husband who's given up

Fear of als

hello I am a 22 year old male I started having body twitches a few  months ago all over I told my doctor and she dismissed it as being normal due to stress, and that it was common. I ignored the twitches until recently my left leg and specifically the thigh area has been feeling odd and has been giving a cramping pain especially when I walk. I believe my strength is still there. I have found so many contradictions online about als so advice would be great. I am aware I have health anxiety this is an issue I'm am trying to deal with but it doesn't help that I worry about this.

The Monster in our Family

The monster in our family started several years and generations ago. We have lost several family members to ALS. On May 5th 1989, ALS took my Dad. He was 37. Six weeks later, it took my Dad's 1st cousin. He was only 29. After 28 years, the monster has reared it's ugly head in our family once again. I have a cousin, she's 33 has a baby that will be 1 in November. It's so completely not fair. Our family has been a subject of studies in Boston with Dr. Brown. I guess I finally decided to blog so that I can make friends, find support to help my cousin fight this battle.

Reflection on My life

Im seeing a neuro on Saturday. I am scared. But i feel hopeful. I have to. I am a worrier by nature. I worry about this and that and i stresa myself Massively. And thats Not Good.

Convinced I have ALS

Hi my name is Ashley I'm a 26 year old registered nurse. I'm sorry I'm not quite sure how to navigate this site yet. About 3 months ago I started having sensory symptoms and was concerned about MS. Had a clean brain MRI and let it go and trusted my neuro. Starting the end of September my first symptom that worried me was a feeling of heaviness in my right arm and now my right leg that has only gotten worse over the weeks.

Pages