My dad was diagnosed with ALS about a year ago while I was living in out East and they were in the Midwest. I moved home to be close to family, help my mother (as she is helping with my dad and brother with Cerebral Palsy), and spend time with my dad while he was still in good health, or as good as can be. Now that I'm home, I have severely struggled as his condition and it's progression is much more obvious to me whereas living away from home I was more separated from the reality.
I'm currently beside myself and would like your opinion please. I have a strong family history of mnd. My father, grand father, auntie and cousin all died within 9-12wks of diagnosis. Very rapid progression....
Hi, my husband was diagnosed with bulbar onset ALS in May 2016. I have noticed that he has started sneezing again and snoring. This may sound a silly question but do you think that is a good sign? He has been doing his own Lunasin trial for the last 3 months.
Hi everyone! My name is Lorraine. This is my first time posting or finding this forum. I'm going to be honest, I'm depressed. I could really use a friend, someone who has seen SOD1 first hand. Maybe a caregiver, who has also lost a family member.
A little about me... I'm 30, and SOD1 runs in my family. The most recent loss was about 7 months ago.
My personal email is email@example.com
I got my test back and was wondering if I could get some help understanding some of the results:
Sensory conduction studies: Right and left sural latencies show no response
Late responses: Right and Left H-reflex latencies show no response
I had the test done because I was involved in a MVA and injured my neck and lower back.
Hi, I'm Kali I am 26 years young, I am married and have three children. My mother started having slurred speech 8-9 months ago and in May found out she indeed has ALS, say what? Only thing I knew about ALS were the bucket challenges a couple years ago! She has the bulbar onset ALS I believe?
Hi I'm a 45 year old male. Approximately 2 months ago I got a strange, stiffness in my Right calf that just hasn't gone away and has gotten progressively worse to the point of hampering my normal walking and is causing some pain around the ankle now. It's also started in my left leg between the calf and the ankle. This is all accompanied by severe fasciculations and spasms, especially at night. These tics are occurring throughout my body. as well.