my mother was diagnosed with ALS LAST YEAR AT AGE 78. She had no symptoms until she fell at a party. Her doctor recommended an MRI on her brain since she had leg sensitivity like restless leg syndrome. We were in shock! In the meantime her progression is very slow. She is now 79.5 and although her walking is stiff she continues to live independently with my father. She plays maj Jong every day, goes out for her coffee or dinner and socializes in her independent living residence. She does get out of breath from talking too much and uses the trilogy machine.
I read the "before posting" post and I cannot help it but have a few questions. I'm male and 25 years old. I had brain fog for 6 weeks, that subsided and now I have a twitch in my right foot. There are twitches all over my body, but the one in my foot is the persistent one. My hands get cold so sometimes it feels like they're a little sluggish, but generally I cant think of a motion I cannot make. If I understand clinical weakness correctly, I shouldn't be worried about sluggish movements being a precursor to ALS, they're just sluggish movements.
My mother was diagnosed with progressive bulbar palsy in August 2017. Devastated does not even begin to describe how we felt as a family. To have a diagnosis that has so little hope associated with it, I still find it hard to believe.
Over the past two years I’ve experienced some alarming symptoms and I am seeking the advice of members of this forum. I would like to first and foremost thank you for your time and consideration.
Many of these symptoms began after I broke my fibula two years ago. I started having an odd cramp on the right side of my abdomen. It would randomly tense and ball up with regular movements. I’ve also had shoulder issues in my left shoulder. I received two cortisone shots which seemingly temporarily resolved the problem.
My sister has worked at the same place for more than 30 years. Some years back there was a toxic mold problem and the business had to close for hazmat crews to come in and make it safe. Awhile later, a co-worker in the warehouse part of the business was diagnosed with ALS. He is now deceased. Prior to the clean-up, my sister and her co-workers were ill for a couple of years with upper respiratory problems, sore throats, etc. Then the mold was discovered and subsequently eliminated (hopefully). Later, the worker was diagnosed with ALS.
My husband have been worry about he got ALS
He have trouble swallow after he sick and feel like food stuck but I alway tell him to take it out but he couldn’t .This is start on October 2017
Just today in the afternoon He got a bit of nasal voice
Is that point to ALS?
He will go to get EMG test on 2nd of Feb hope no bad news:(
Recently (11/9/17) diagnosed with B.A.D. Symptoms since January of 2016. Had emg July of 2016 indicating multiple issues with left arm and neuro raised the prospect of ALS, However, mri at same time reflected cervical issues that might be cause. Two cervical surgeries this year with only worsening of condition. Left arm/hand almost gone and right arm/hand following same pattern. Sent to U.T. Southwestern Medical Center Motor Neuron Clinic in Dallas. Emg ncv indicated severe damage in left arm, moderate in back and mild in leg. Dx on 11/9/17 was B.A.D.
Hi I am a 28 year old RN in Las Vegas. Unfortunately medicine here is not very advanced and we do not have very many specialist. I have been seeing a neurologist for over a month for only 3 blood test for myasthenia gravis and an RNS to be done. My symptoms are seeming to worsen. I’m guessing this all started August 2015 immediately after giving birth I noticed difficulty swallowing. It almost felt like my throat was going numb. This wasn’t an everyday occurrence so I brushed it off as stupid things.
I’m very scared I have als my body feels weak i don’t want to get out of bed I cry all the time Bc I’m scared my daughter will grow up without a father I have like weird spasms in my legs and arms my arms feel heavy just typing this on my phone I have no appetite lost so much weight but none in my stomach feels lIke lump in my throat my spine gets this weird feeling whenever I move it down towards my chest my hands shake none stop my legs get tight it’s just awful I’m extremely scared my legs feel so weak like I’m walking funny I don’t know what to do people think I’m crazy but Ik my body I