My father was recently diagnosed with ALS, its onset is in the bulbar region, we are currently waiting for his first Doctor's appt, which seems to be taking forever. I am just looking to someone to give me advice about how quickly the disease will progress etc...really just need some information from someone has gone through...thank-you
In January of 2015 I was pregnant and in nursing school I started having leg twitching. In January of 2016 I lost vision in my left eye for 45 seconds or so, had an MRI In which case they found 9 lesions, sent me to an MS specialist in march who said I did not have ms but that we would do a repeat MRI in July.. we did and the lesions were unchanged. He said he didnt think I had ms and that I most definitely didn't have mnd... we would do another scan in July of 217 since then I've had widespread twitching. No atrophy and perceived weakness.
I am asking if anyone found something that would work for them different than the head master.
I was looking at body armor and other stuff.
judy the arcticseawitch
hello I am a 22 year old male I started having body twitches a few months ago all over I told my doctor and she dismissed it as being normal due to stress, and that it was common. I ignored the twitches until recently my left leg and specifically the thigh area has been feeling odd and has been giving a cramping pain especially when I walk. I believe my strength is still there. I have found so many contradictions online about als so advice would be great. I am aware I have health anxiety this is an issue I'm am trying to deal with but it doesn't help that I worry about this.
The monster in our family started several years and generations ago. We have lost several family members to ALS. On May 5th 1989, ALS took my Dad. He was 37. Six weeks later, it took my Dad's 1st cousin. He was only 29. After 28 years, the monster has reared it's ugly head in our family once again. I have a cousin, she's 33 has a baby that will be 1 in November. It's so completely not fair. Our family has been a subject of studies in Boston with Dr. Brown. I guess I finally decided to blog so that I can make friends, find support to help my cousin fight this battle.