I'm not sure how to start. Diagnosed in Feb 2018. Started clinical trial 2 weeks ago. Heading to Mayo in Rochester in a few days. I'm 60 and healthy all my life. Never used drugs or smoked and almost never used alcohol. I guess it doesn't matter to ALS. STRUGGLED with severe depression and anxiety for 4 months. Waiting. Like someone said, would you have lived your life differently if you knee sooner. I felt I knee what I had 5 months ago. All the tests and waiting were unbearable. Just looking for some friends to offer support and advice and I will return the favor.
My husband was diagnosed with ALS in May of 2017. Since then he has declined at a very fast rate. He is on a trilogy machine 24/7 and is complete quadriplegic. How long can we expect the trilogy to work for him?
Hello everyone , nice to meet you guys!
Hi I am new and read many symtoms on threads and am still concerned.
1) a month ago stiffness in right forearm and two right fingers and a cold hand.
2) constantly have tight calf muscles but haven’t seemed to lose any strength or abilities and legs feel tired.
3) more than normal shortness of breath
4) stuff and cracking joints in knees and feet more than usual
5) can all of this be health anxiety related from googling symtoms 24/7?
In most cases does als attack one muscle group at a time or just one side?
Hello ladies and Gents,
My names Kobyn, over in Canada, Im looking for advice on a few forums online and looking for advice on how to help others basically.
Hello I am a 20 year old male and scared that I might have als because I've been having muscle twitching.
My father past away in October from als, I was the one always with him taking care of him and I would see everything that would happen to him. So lately I've been going thru a lot of anxiety and having muscle twitching all over my body and I am constantly checking my muscles and my strength and my voice and I start freaking out I am so scared of having it
My husband was diagnosed with ALS Jan 2018, onset symptoms started Feb 2017. He first had cramping in right calf muscle then foot drop. His right leg started wasting away shortly after and he lost 40-50lbs within months. He began to have trouble breathing in Aug 2017 just 7 months after onset symptoms. At first he used the bipap machine only at night but now he's using it almost all day. He also uses a cough assist machine as needed. My husband can still talk and eat alone, thankfully. But he does need a lot of assistance with his basic needs.
my mother was diagnosed with ALS LAST YEAR AT AGE 78. She had no symptoms until she fell at a party. Her doctor recommended an MRI on her brain since she had leg sensitivity like restless leg syndrome. We were in shock! In the meantime her progression is very slow. She is now 79.5 and although her walking is stiff she continues to live independently with my father. She plays maj Jong every day, goes out for her coffee or dinner and socializes in her independent living residence. She does get out of breath from talking too much and uses the trilogy machine.
I read the "before posting" post and I cannot help it but have a few questions. I'm male and 25 years old. I had brain fog for 6 weeks, that subsided and now I have a twitch in my right foot. There are twitches all over my body, but the one in my foot is the persistent one. My hands get cold so sometimes it feels like they're a little sluggish, but generally I cant think of a motion I cannot make. If I understand clinical weakness correctly, I shouldn't be worried about sluggish movements being a precursor to ALS, they're just sluggish movements.