Hi my name is Brad I haven't been diagnosed with ALS I've been having weird symptoms like numbness, burning sensations or a prickly feeling It gave me crazy anxiety and I ended up going to the ER and they gave me many tests and said I'm fine. Two weeks after the first symptoms I started getting those muscle twitches which gave me more anxiety ... I also have this continuous pain in my legs mostly my knees and my joints crack every time I move.
I started complaining about leg fatigue in August 2015. After being referred to a vein doctor, who cauterized several veins, the fatigue, or weakness as I call it today, returned within a few short weeks. By February, 2016, I went back to my primary care doctor who said that we might be looking at ALS, which of course freaked me out. As such, I started researching different websites, including the ALS Foundation, which led me to the Mayo Clinic in Scottsdale, AZ. In April, 2016, the doctors performed a series of tests, which included an EMG.
Happy new year
I am a new member,a 50 year old Greek lawyer,married mother of two boys 16 and 19 years old.
My father was recently diagnosed with ALS, its onset is in the bulbar region, we are currently waiting for his first Doctor's appt, which seems to be taking forever. I am just looking to someone to give me advice about how quickly the disease will progress etc...really just need some information from someone has gone through...thank-you
In January of 2015 I was pregnant and in nursing school I started having leg twitching. In January of 2016 I lost vision in my left eye for 45 seconds or so, had an MRI In which case they found 9 lesions, sent me to an MS specialist in march who said I did not have ms but that we would do a repeat MRI in July.. we did and the lesions were unchanged. He said he didnt think I had ms and that I most definitely didn't have mnd... we would do another scan in July of 217 since then I've had widespread twitching. No atrophy and perceived weakness.
I am asking if anyone found something that would work for them different than the head master.
I was looking at body armor and other stuff.
judy the arcticseawitch