dbl30569
New member
- Joined
- Sep 17, 2006
- Messages
- 1
- Reason
- PALS
- Country
- US
- State
- CO
- City
- Grand Junction
Hi,
I'm a 41 yo in CO. A short timeline:
Jan 05 - Symtom onset (thumb weakness) followed by hand and arm atrophy.
Aug 05 - Dx'ed with ALS Aug 05 by local Neuro (1).
MRI found herniated C5-6 with root nerve & cord compression which, at the time, was considered the source of symtoms.
Sep 05 - UCDHSC ALS Neuro specialist (2) un-Dx'ed ALS but recommended ACDF.
Dec 05 - Surgery 5-6 ACDF
July 06 - Followup with (2) but would not Dx.
Aug 06 - Dx'ed with ALS by another local Neuro (3).
Left hand & arm severely atrophied, now I have leg weakness.
To date, I've received no direction, suggestions, recommendations, treatment, etc. from 3 Neuro's. I'm frustrated and don't know what to do next.
I'm going to try to see E. Peter Bosch, Mayo Clinic Scottsdale. Any other suggestions?
Thanks, Don
I'm a 41 yo in CO. A short timeline:
Jan 05 - Symtom onset (thumb weakness) followed by hand and arm atrophy.
Aug 05 - Dx'ed with ALS Aug 05 by local Neuro (1).
MRI found herniated C5-6 with root nerve & cord compression which, at the time, was considered the source of symtoms.
Sep 05 - UCDHSC ALS Neuro specialist (2) un-Dx'ed ALS but recommended ACDF.
Dec 05 - Surgery 5-6 ACDF
July 06 - Followup with (2) but would not Dx.
Aug 06 - Dx'ed with ALS by another local Neuro (3).
Left hand & arm severely atrophied, now I have leg weakness.
To date, I've received no direction, suggestions, recommendations, treatment, etc. from 3 Neuro's. I'm frustrated and don't know what to do next.
I'm going to try to see E. Peter Bosch, Mayo Clinic Scottsdale. Any other suggestions?
Thanks, Don