Narrowminded
Extremely helpful member
- Joined
- Apr 30, 2016
- Messages
- 2,830
- Reason
- Lost a loved one
- Diagnosis
- 07/2007
- Country
- US
- State
- PA
- City
- Pittsburgh
Hi All,
Well, after all of this time, we are back into progressions. Our newest development is that Brian is now getting slightly tachicardic when I feed him. We've had to slow that way down. I may have to figure out how I can thin his food enough to go back to the pump.
I did an experiment today, I still had some canned Glucerna here so I tried that at lunch to see if maybe it was something in the food I make. Nope, same issue. So note off to his physician in the morning.
Then, I noticed that his Button is leaking, both around the stoma area and around where I put the tube in. The bad thing is, this particular button has a hard interior piece. In order to replace it, he will need an endoscopy. Now I need to try and get a physician to take him sight unseen. And I want to switch it to a regular type of tube, so that if a change is needed it is easier to accomplish.
I know I can just ask his neuro to deal with that for me, but he really doesn't want to head to that hospital. Long ride. So, I'm going to try for one that's closer to home. Hopefully that will work.
The other issue is getting him there. Ambulance would be the best way, but that's pricy unless a physician orders the transport or it's an emergency.
Always something to keep us on our toes.
Has anyone esle's PALS experienced the tachicardia when eating? If I give him some xanax it settles him and the HR. It's not high enough to take him to the ER, but high enough to bother him. Usually about 120 bpm
Hugs,
Sue
Well, after all of this time, we are back into progressions. Our newest development is that Brian is now getting slightly tachicardic when I feed him. We've had to slow that way down. I may have to figure out how I can thin his food enough to go back to the pump.
I did an experiment today, I still had some canned Glucerna here so I tried that at lunch to see if maybe it was something in the food I make. Nope, same issue. So note off to his physician in the morning.
Then, I noticed that his Button is leaking, both around the stoma area and around where I put the tube in. The bad thing is, this particular button has a hard interior piece. In order to replace it, he will need an endoscopy. Now I need to try and get a physician to take him sight unseen. And I want to switch it to a regular type of tube, so that if a change is needed it is easier to accomplish.
I know I can just ask his neuro to deal with that for me, but he really doesn't want to head to that hospital. Long ride. So, I'm going to try for one that's closer to home. Hopefully that will work.
The other issue is getting him there. Ambulance would be the best way, but that's pricy unless a physician orders the transport or it's an emergency.
Always something to keep us on our toes.
Has anyone esle's PALS experienced the tachicardia when eating? If I give him some xanax it settles him and the HR. It's not high enough to take him to the ER, but high enough to bother him. Usually about 120 bpm
Hugs,
Sue