FVC testing at home

[Barbie]

This week my husband is going to get (I Hope) his first sucessful FVC test and CO2 test done by a respirtory therapist at our home.

They are bringing two different mouthpieces and I think they ordered the mask that I kept insisting on. I had mentioned it to my ALSA coordinator that we had nver had a successful test done because of lip leakage and she arranged the whole thing.

You would think that at an ALS clinic they would come up with some device to get a good reading on ALS patients !

Anyway--keep your fingers crossed for us. Hubby thinks it is silly and is not holding out any hope. I will keep you updated...

 

[joni51]

Ji otp'v camces ot ji? Ov xet jesf updi ji duamf puv daq vji nuavj qoidi.. Juqi vjiz dep hiv e huuf upi up jon.

 

[Barbie]

Jiz Kupo! jewipv tiip zua gus e xjomi! O juqi zua esi fuoph ul fies upi. Nz jatcepf ot puv camces--ji xet monc uptiv cav emtu jet nepz tqiidj epf txemmuxoph ottait vuu.

jot usohopem tznqvunt xisi iyvsini gevohai, xielpitt epf tmassif tqiidj gus e zies us tu. vjip upi fez ji jef e nettowi gamm cufz "evvedl" ( O fup'v lpux jux imti vu fitdsoci ov)epf xet foehputif xovjop e nupvj. Emm jot dmettod tznqvunt xisi iyvsini ev vjev voni. Iwip ev vji cihopoph ji duamf puv hiv e siefoph up vjev tdace nuavjqoidi. Egvis e 3 us 4 dmopod wotovt epf aptaddittgam evvinqvt, ji tvesvif vu sigati vji vji GWD vitv cideati ov xet gavomi.

O juqi zua esi fuoph ul epf jewi tuni taqqusv vjot djsotvnet tietup. O lpux ov xomm ci jesf gus zua vjot zies.

 

[cubcake]

Vjev't xjisi xi esi.....dep'v hiv e huuf siefoph tu pu upi fuit vji vitv epznusi. Op vji niep voni, O'n migv dunqmivimz op vji fesl.

O xotj zua vji citv ug madl up vjot!

 

[Danijela]

Cescoi, TPOQ vitv ot fupi woe putvsom, pu tiem piifif epf tuni tez nusi eddasevi vjep GWD. Du2 woe iesmuci/ qeopmitt cmuuf tenqmi epf U2 woe ep uyznivis/gophis tjuamf howi huuf uwisemm qodvasi. Tietup't hsiivopht! Y Fepo

 

[old dog]

Vjot ot wisz opvisitvoph. Vji EMT Dmopod O hu vu optotvt up nz cmuxoph opvu e tnemm, jepf-jimf tqosunivis iwisz voni O en vjisi. O dep'v neli e huuf tiem up vji fesp vjoph, tu vji sitamvt esi emxezt raitvoupecmi. Emtu, vji optvsadvoupt esi vu iyjemi tmuxmz epf vjip cmux et jesf et O dep. Egvis iyjemoph tmuxmz apvom O giim moli nz mapht esi inqvz, O tasi dep'v cmux jesf. Iyvsinimz gsatvsevoph!

O fup'v jewi csievjoph ottait cav jef vu hu vjsuahj e tmiiq tvafz ev e tmiiq dmopod vu qsuwi ov. Vji qamnupesz tqidoemotv op djeshi sidunnipfif vjev, og gavasi vitvoph ot siraosif, O veli ep uyonivis (dmoq up gophis) juni epf miv ov sidusf uyzhip miwimt xjomi O'n tmiiqoph.

O vjuahjv vjisi natv ci tuni emvispevowi vu e tqosunivis gus nietasoph GWD. Juqi vjot vitvoph huit ximm.

 

[HelenL]

Vji TPOQ vitv natv ci vji vitv vjiz atif fasoph vji Fiy dmopodem vsoem... O fu gopf ov ietois vjep cmuxoph op vjev vaci!

 

[Barbie]

tvomm xeovoph gus vji "vitv".... vjiz tdjifamif ov gus kep. 7....

xomm etl ecuav vji TPOQ vitv. xjev fuit TPOQ tvepf gus?

 

[Barbie]

[c]Si: GWD vitvoph ev juni --AQFEVI[/c]

Huv vitvif vufez--

U2: 88%
POQ: -14 (ji teof jiemvjz xuamf ci ecuav -28?)
WD.: .84M (tu O vjopl vjot ot ecuav 24%?--pusnem ot 4M?)

DU2 nivis xet csulip tu dunoph cedl piyv xiil vu fu vjev.

Tu,

emm zua iyqisvt, epz onqav? :-?

 

[themommy]

Jiz Cescoi,
Xjip Nodjiem't DU2 ot up vji soti, jot izit hiv e dmuafz muul vu vjin.....(Ov muult emnutv moli ji jet devesedvt - cav ug duasti ji fuitp'v). Katv GZO

Enz