Barbie
Extremely helpful member
- Joined
- Dec 29, 2007
- Messages
- 2,681
- Reason
- Lost a loved one
- Diagnosis
- 01/2007
- Country
- US
- State
- FL
- City
- orlando
This week my husband is going to get (I Hope) his first sucessful FVC test and CO2 test done by a respirtory therapist at our home.
They are bringing two different mouthpieces and I think they ordered the mask that I kept insisting on. I had mentioned it to my ALSA coordinator that we had nver had a successful test done because of lip leakage and she arranged the whole thing.
You would think that at an ALS clinic they would come up with some device to get a good reading on ALS patients !
Anyway--keep your fingers crossed for us. Hubby thinks it is silly and is not holding out any hope. I will keep you updated...
They are bringing two different mouthpieces and I think they ordered the mask that I kept insisting on. I had mentioned it to my ALSA coordinator that we had nver had a successful test done because of lip leakage and she arranged the whole thing.
You would think that at an ALS clinic they would come up with some device to get a good reading on ALS patients !
Anyway--keep your fingers crossed for us. Hubby thinks it is silly and is not holding out any hope. I will keep you updated...