patricia1
Very helpful member
- Joined
- Sep 18, 2006
- Messages
- 1,171
- Reason
- PALS
- Diagnosis
- 7/1999
- Country
- US
- State
- newjersey
- City
- lopatcong NJ
No muscle biopsy
Hi Guys Went to my ALS clinic and asked for a muscle biopsy My neuro Say if I thought you didnt have ALS I would give you one, Let me give you another emg and if it is still ok I will give you a Biopsy He said A emg is a better test then a Muscle biopsy because a muscle biopsy is given if there is a muscle disease which I know you dont have ,like myopathy It doesnt really show nerve damage like EMg does
So now I am going to make an appt for a EMG.
Oh by the way he said my arm weakness is worse which I knew but for a person that was seen 9 months ago ,he thinks my progession is not really that bad. My swallowing and speech is the same and my legs are only slightly weaker in the ankles.
I asked him why if I had bulbar onset Why am I still here. He explain the reason people die quickly with Bulbar onset,is because those people usually die from pnuemonia from aspiration or choke to death because of trouble swallowing. He read in a text they some bulbar patients live very long if they dont run into problems with choking and swallowing because the disease doesnt move to other areas as quickly. I dont know it he was blowing smoke up my a--. Any way he calls me lucky. Yep real lucky! Who is he kidding. I keep telling him what if you are missing something.He said you saw 5 neuros who said ALS,But that was after 5 years, I said. I really think they dont really listen.
Thats my new story Stay tune Pat
Hi Guys Went to my ALS clinic and asked for a muscle biopsy My neuro Say if I thought you didnt have ALS I would give you one, Let me give you another emg and if it is still ok I will give you a Biopsy He said A emg is a better test then a Muscle biopsy because a muscle biopsy is given if there is a muscle disease which I know you dont have ,like myopathy It doesnt really show nerve damage like EMg does
So now I am going to make an appt for a EMG.
Oh by the way he said my arm weakness is worse which I knew but for a person that was seen 9 months ago ,he thinks my progession is not really that bad. My swallowing and speech is the same and my legs are only slightly weaker in the ankles.
I asked him why if I had bulbar onset Why am I still here. He explain the reason people die quickly with Bulbar onset,is because those people usually die from pnuemonia from aspiration or choke to death because of trouble swallowing. He read in a text they some bulbar patients live very long if they dont run into problems with choking and swallowing because the disease doesnt move to other areas as quickly. I dont know it he was blowing smoke up my a--. Any way he calls me lucky. Yep real lucky! Who is he kidding. I keep telling him what if you are missing something.He said you saw 5 neuros who said ALS,But that was after 5 years, I said. I really think they dont really listen.
Thats my new story Stay tune Pat