ALSBurger
Member
- Joined
- Oct 2, 2012
- Messages
- 16
- Reason
- Learn about ALS
- Country
- US
- State
- Bizness
- City
- Nonya
It's been bothering me because the main BFS site plainly states that if you have muscle twitching with no weakness or generalized fatigue, then you do not have ALS.
And that ALS does not begin with muscle twitching by itself, but in fact the twitching comes after atrophy and weakness has been going on for awhile.
Additionally they state that if your twitches are larger muscle groups with obvious visual appearance, there's no way its ALS because ALS is primarily tiny, micro spasms that are usually not involving major muscle groups.
I believe all three of these statements to be completely false, yet they are the premise upon which the BFS site informs its members.
thoughts?
And that ALS does not begin with muscle twitching by itself, but in fact the twitching comes after atrophy and weakness has been going on for awhile.
Additionally they state that if your twitches are larger muscle groups with obvious visual appearance, there's no way its ALS because ALS is primarily tiny, micro spasms that are usually not involving major muscle groups.
I believe all three of these statements to be completely false, yet they are the premise upon which the BFS site informs its members.
thoughts?