Where to get help

[Lissa]

I hope someone can help with this. I am visiting my mom who lives in southern Illinois, she has als. She is completly bedridden. Hospice comes in 2 times a week and my dad takes full care of mom. I live in California so I am not much help. How can we get her full care without paying $100 a day. Social Security isn't enough and my dad is retired and can't afford any care. Is there any other way to get help finanically for her care?

Thanks

 

[gagirl]

Hey Lissa,
I would advise talking to Hospice. They have so many resources. We get help from hospice and they have a social worker that is loaded with information on community resources and the volunteer program through hospice that could be of great help to you. I hope this helps you.

 

[CindyM]

I would add that you contact the MD chapter in her area and her local ALS clinic. They might know of resources also.

 

[Lissa]

I will check with Hospic, the local ALS is in Indianapolis which is four hours away. What is MD chapter?

Thanks everyone

 

[Al]

Muscular Dystrophy Association. They help with ALS as it is a muscular disease.

AL.

 

[Lissa]

Thanks Al,

I thought so, but I always refered to it as MDA. I will check on things Monday. I wish I would win the lotto and give it to ALS to find out what causes this stupid disease.

Love to All,

Lissa