My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing.
We have been discussing living arrangements as her mobility and breathing decline.
Other pALS out there, what did you decide? Did you...
This possible alert goes to Veteran Members and other members here too.
This morning I received a phone call from a TriAlliance Community Service
(I think that was correct name) saying the VA referred me to them.
I don’t think the VA refers their patients to civilian services.
Here’s how the...
For what it's worth... many may already know.
When you have a diagnosis of ALS you are automatically considered 100%
disabled with Social Security.
If you own a home in many states you are eligible to a tax reduction.
Go to your tax office with your SS Award Letter and apply.
Here in NC they...
I was diagnosed Wed before Thanksgiving 2017!
I went to Mayo believing I had NPH (normal Pressure Hydrocepheous) I had been to 4 local Neurologist and all felt it was NPH, but because Spinal Tap and draining 40 CC of spinal fluid didn't help, we ere playing "stump the doctor" EMGs on Legs were...
Giving this a try. A little background for my dad: He was diagnosed early months of 2017, receives Social Security Disability. Medicare A and B, recently enrolled into Supplemental Insurance as well. My mother depended completely on his income when he did work. My dad can no...
My wife is 58 and will turn 59 in January. She worked 31 years and her and her employers contributed over $100,000+ to social security. When she was diagnosed with ALS, she hadn't worked for 5 years so she didn't qualify for Social Security Disability (SSD). We had too much in retirement and...
I was diagnosed in Dec 2016 and I applied for social security right away. I received a denial letter already stating "Though you do have discomfort, the evidence shows you are still ale to move about and to use your arms, hands and legs in a satisfactory manner." and "your condition results in...
My husband has been diagnosed with FTD and a few months later we received a diagnosis from Barnes in St. Louis that he has familial ALS. His dad died 20 years ago with this horrific disease , and his sister died in 2014 of ALS. My husband has the repeated gene C9orf72 gene which links ALS and...
Today marks the second anniversary of my first ALS diagnosis. We lived in Northeast Georgia at the time and had traveled home to Pennsylvania for the long Thanksgiving weekend. On Sunday of that weekend we drone form Pennsylvania down to see Dr. Pulley in Jacksonville, Florida for our Monday...