Chumpy
Active member
- Joined
- Dec 23, 2014
- Messages
- 42
- Reason
- CALS
- Diagnosis
- 11/2014
- Country
- US
- State
- Texas
- City
- Fort Worth
Any information on this would be great! PAL has Bulbar ALS, but not the laughing and crying. We've heard good things on the bulbar side, but concerns on side effects! Please share your experience with this medicine!
Speech is almost gone, swallowing barely, FVC 40% so diaphragm is getting weaker! Doctor wants PAL to have tracheotomy, currently using Trilogy 100 with mask.
Thank you all in advance!
Robyn & Jon
Speech is almost gone, swallowing barely, FVC 40% so diaphragm is getting weaker! Doctor wants PAL to have tracheotomy, currently using Trilogy 100 with mask.
Thank you all in advance!
Robyn & Jon