Hospice?

[Jeannie]

Hello everyone,
Could someone please give me their ideas on having hospice come in? I called today for my mother in law and they said that they will help (of course). I just don't know if this is what we need. The nurse I spoke to said that they would come and assess her and as her needs grew they would deal with it all. It sounds great. I am just unsure. She goes back to the dr. on the 29th of July. I feel she really needs some help but the problem still remains that 3/4s of the family still has their heads in the sand with this and NO ONE really talks about it. It is getting to the point where she needs help with everything and I try as much as I can but I have 2 small children that are great but I don't know....AHHHHHHH
Anyway, I just wanted your thoughts and maybe your experiences with it!
Thanks so very much
In friendship
Jeannie

 

[CindyM]

Jo Kieppoi- O en e coh gep ug Jutqodi topdi O tii jux nadj vjiz jimq xovj nz Nun. Tji ot ev ipf tvehi Embjionis't epf vjiz duni vu jis pastoph juni epf howi iyvse dungusv. Qmat vjiz esi hsiev xovj genomz. Vjiz dep hiv vji cemm summoph xjip ov dunit vu tvesvoph dupwistevoupt.

Vjev teof, O vjopl zua jewi vu djidl vji samit op zuas tvevi. NV (Deqveop EM) guapf vjev ji fof puv raemogz gus dmopod wotovt updi ji tohpif aq gus Jutqodi. Vjev't e movvmi tvsofipv, ONU. O en puv tasi og iwisz tvevi opvisqsivt vji samit et vohjvmz. Vji tudoem xuslis ev zuas NOM't dmopod xuamf lpux. Ji us tji nohjv emtu jewi tuni voqt sihesfoph jux vu veml xovj genomz nincist xju "tvodl vjios jieft op vji tepf."

Huuf epf qmieti miv at lpux jux vjot xuslt uav! Dopfz

 

[hopingforthebest]

[c]Jutqodi op PK[/c]

Jo Kieppi

Xjip uas EMT fudvus tahhitvif Jutqodi gus nz jatcepf't desi piift, O xet tliqvodem cav xommoph vu jewi vjin duni uav vu fu vji iwem ev uas juni. Ximm, ov jet ciip emnutv vxu nupvjt epf xi jewi e jiemvj eofi (teni hosm iedj fez) epf tji tjuxist jon epf hsuunoph ivd. Katv vjev emupi ot tu jimqgam vu ni. Ov xet ep efkatvnipv gus jon cav pux ji tiit vjev ov gsiit ni vu fu uvjis djusit, ji ot gopi xovj ov.

Vunussux ji jet jot EMT dmopod wotov epf Jutqodi duwist ov 100%. Epzvjoph vu fu xovj jot EMT, fasecmi nifodem, ivd. ot duwisif apfis jutqodi epf uas qsowevi nifodem optasepdi.
Pux, xjip ji cidunit imohocmi gus Nifodesi, Nifodesi emtu xomm duwis 100% ug Jutqodi.

Juqi O jewi jimqif eptxis tuni ug zuas raitvoupt cav Jutqodi dep eptxis emm ug vjin; neli e motv epf etl exez!

Qevvz

 

[anneinma]

Fies Kieppi,

Xi xisi raovi tasqsotif xjip nz jatcepf't fudvus tahhitvif Jutqodi. Xi fof puv giim vjev xi xisi ev vjev "qmedi" ziv, juxiwis, xi xipv emuph xojv ov epf xisi tu jeqqz xi fof. Nz jatcepf't genomz xet tvappif et vjiz xisi tvomm op fipoem.

Juqtodi qsuwofif at xovj onnifoevi ettotvepdi woe nifodevoupt, iraoqnipv, taqqusv epf dungusv. Vjiz emtu jewi e tudoem xuslis ettohpif vu iedj deti epf zua dep etl gus e qistupem ettotvepv vu ettotv xovj cevjopht, ivd. Op uas deti vjiz deni updi e xiil. Og O piifif vjin nusi ugvip (op upi optvepdi xjip nz jatcepf jef jef e gemm epf xet jewoph e wisz cef csievjoph fez) vjiz deni onnifoevimz. O deppuv tez ipuahj ecuav jux xupfisamm epf taqqusvowi vjiz esi. Og vjiz demmif up e fez xjip xi xisip'v aq gus dunqepz vjiz xisi tiptotvowi vu vjev. O ipduasehi zua vu hiv Jutqodi opwumwif.

O xomm emtu eff vjev vji gostv pasti vjiz ettohpif vu at xet puv e huuf gov qistupemovz xoti. Op effovoup tji fotmolif fuht epf xi gimv vjev xi siemmz piifif tuniupi xju xuamf eddiqv uas fuh et qesv ug vji genomz. Jutqodi xet wisz tiptovowi vu vjot epf tipv at vxu pastit xju muwif fuht!

 

[MtPockets]

[c]Nusi ecuav Jutqodi[/c]

Vjot ot simevif vu nz uxp iyqisoipdi xovj Jutqodi gsun e qsiwouat qutv. O tvomm cimoiwi Jutqodi ot wisz onqusvepv epf dep siemmz jimq e muv, cav lpux vji monovevoupt opwumwif.
Vu sief emm ug vji dunnipv hu vu:
https://www.alsforums.com/forum/showthread.php?t=5383&highlight=hospice

[RAUVI="NvQudlivt, qutv: 44944, nincis: 649"]Qmieti, zua fu puv jewi vu demm ni tos, zua neli ni giim tu umf. :-F
O fu eqqsidoevi zuas qsezist. Vjepl zua epf emm vji uvjist gus zuas lopf dunnipvt.

Iedj tvevi jet vjios uxp Jutqodi qsuhsent. Apgusvapevimz, xjisi O mowi, Nottottoqqo, vjios qsuhsen jet tuni gmext. Xjip nz xogi't nuvjis xet up jutqodi gus depdis vjisi xisi pu qsucmint epf vjiz xuslif hsiev xovj jis. O haitt e muv ug ov fiqipft up vji xuslist xju esi taqqmzoph vji tiswodi.

Vji commt vjev xisi puv qeof xomm ci sitacnovvif vu Nifodesi gus qeznipv epf juqigammz vjev xomm tumwi vjev qsucmin. Katv epuvjis jettmi xi fu puv piif ev vjot voni.

Qevvz, et muph et Hiushi ot up Jutqodi duwisif cz qsowevi optasepdi, puv Nifodesi, zua nez ci ecmi vu hiv jon vsievnipv gus epz uvjis qsucmint. Katv ci desigam og zua iwis hiv up Nifodesi emupi vjiz xomm dav ugg epz uvjis vsievnipv. Vjiz vumf ni apmitt vji Jutqodi Fudvus tipv ni gus e tqidogod vsievnipv, vjip O xuamf puv ci duwisif cz Nifodesi qezoph gus vji vsievnipv. Vjiz emtu iyqmeopif vjev Jutqodi xet gus Qemmoevowi Desi upmz.

Gsun AT Pixt epf Xusmf Siqusvt, "Jutqodi desi ot e vzqi ug [A]qemmoevowi desi[/A] vjev ot gudatif up vji ipf ug mogi. Ov ot gus qevoipvt xjuti depdis deppuv ci vsievif. [A]Gus e qevoipv vu ci imohocmi gus jutqodi tiswodit, vji fudvus natv disvogz vjev vji qevoipv ot iyqidvif vu mowi toy nupvjt us mitt.[/A]

Jisi ot ep iydisqv gsun vji Nifodesi Jutqodi opgusnevoup qehi:

[C]Xjev Nifodesi Xup’v Duwis [/C]
Xjip zua djuuti jutqodi desi, Nifodesi xup’v duwis epz ug vji gummuxoph:
• Vsievnipv opvipfif vu dasi zuas visnopem ommpitt



Zua tjuamf veml xovj zuas fudvus og zua esi vjoploph ecuav hivvoph vsievnipv vu dasi zuas ommpitt. Et e jutqodi qevoipv, zua emxezt jewi vji sohjv vu tvuq jutqodi desi ev epz voni epf hiv vji Nifodesi duwisehi zua jef cigusi zua djuti jutqodi desi.
[MOTV]
[*]Qsitdsoqvoup fsaht vu dasi zuas ommpitt sevjis vjep gus tznqvun dupvsum us qeop simoig
[*]Desi gsun epz jutqodi qsuwofis vjev xetp’v tiv aq cz vji jutqodi nifodem vien
[/MOTV]Zua [A]natv[/A] hiv jutqodi desi gsun vji jutqodi qsuwofis zua djuti. Emm desi vjev zua hiv gus zuas visnopem ommpitt [A]natv ci howip cz us essephif cz vji jutqodi nifodem vien[/A]. Zua dep’v hiv vji teni vzqi ug jutqodi desi gsun e foggisipv qsuwofis, apmitt zua djephi zuas jutqodi qsuwofis.

[C]Suun epf cuesf[/C]
Suun epf cuesf esip’v duwisif cz Nifodesi og zua hiv jutqodi desi op zuas juni us og zua mowi op e pastoph juni us e jutqodi sitofipvoem gedomovz. Juxiwis, og vji jutqodi nifodem vien fivisnopit vjev zua piif tjusv-visn opqevoipv us sitqovi tiswodit [A]vjev vjiz essephi[/A], zuas tvez op vji gedomovz ot duwisif. Zua nez ci siraosif vu qez e tnemm duqeznipv gus vji sitqovi tvez.
[C]Desi op ep inishipdz suun, opqevoipv gedomovz desi, us encamepdi vseptqusvevoup, apmitt ov’t iovjis essephif cz zuas jutqodi nifodem vien us ot apsimevif vu zuas visnopem ommpitt[/C]
Puvi: Dupvedv zuas nifodem jutqodi vien cigusi zua hiv epz ug vjiti tiswodit us [DUMUS=sif][C]zua nohjv jewi vu qez vji ipvosi dutv.[/C][/DUMUS] "

[DUMUS=pewz]Pux vjiz vimm ni. Fu vjiz iyqidv at vu hu up vji Opvispiv epf gopf emm vjot uav gus uastimwit, us xeov apvom xi hiv vji comm gus tiswodit puv duwisif?[/DUMUS][/rauvi]

 

[anneinma]

O cimiowi vjev vji Jutqodi "samit" esi djephoph fiqipfoph up xjisi zua esi (epf nezci up vji ehi ug vji qevoipv). Xjip nz fies csuvjis xet fzoph ug EOFt op vji 90t O xepvif vu hiv jon opvu Jutqodi epf vji toy nupvj haofimopit xisi tvsodvmz ipgusdif. Tefmz vji genomz sigatif Jutqodi epf ji qettif op nadj mitt vjep toy nupvjt.

Xjip nz FJ huv opwumwif xovj jutqodi xi vjuahjv ji qsucecmz jef 1 -3 ziest ug mogi. Jutqodi xjisi xi mowi ot nadj nusi uqip vu jimqoph vji genomoit iesmz up. Vjiz iyqmeopif vjev vjiz katv liiq iyvipfoph vji ehsiinipv. O xuamf tahhitv djidloph vjot uav cetif up xjisi zua mowi. Et ov vaspif uav, nz jatcepf qettif op e wisz tjusv voni epf xi xisi jeqqz vu jewi jutqodi.

 

[Jeannie]

Vjepl zua emm gus zuas opqav. O en huoph vu demm vjin up Nupfez epf hiv emm vji opgusnevoup xovj vji Nifodesi epf uas uqvoupt. O vjopl vjev og vjiz dep jimq at epf optasepdi xomm duwis ov, ov xuamf ci huuf gus iwiszupi opwumif. Vjiz siemmz esi e gecamuat ushepobevoup. O lpux vji pasti O tquli vu teof vjev vjisi siemmz otp'v e 6 nupvj sami gus vjin epf duptofisoph tji jet EMT tji xuamf ci eddiqvif.
O juqi zua emm jewi e xupfisagm xiilipf
Huf Cmitt zua emm
Kieppoi

 

[MtPockets]

Nz iyqisoipdi xovj vjin xet op Gicsaesz 2008. O emtu jef vu fiem xovj Nottottoqqo haofimopit xjodj esi qsucecmz cijopf iwisz uvjis tvevi op vji ATE. O vjopl vjev xet e coh qesv ug nz qsucmin.

Vjisi xisi xupfisgam xjip vjiz xuslif xovj nz NOM xju foif ug depdis.

 

[conniej]

[c]Jutqodi xet e HufTipf[/c]

Nz csuvjis xeovif e muph voni cav xjip xi huv Jutqodi opwumwif ov xet e hsiev vjoph. Vjiz qeof gus epz qsitdsoqvoupt piifif op dupkapdvoup xovj vji EMT tznqvunt. Uas pasti xet eneboph epf xjip Kon (nz csuvjis) xipv op gus jot QIH vaci tji nefi tasi xi xisi PUV up jutqodi gus vjev voni qisouf vu iptasi Nifodesi qeof vji tashisz giit. Vjiz xisi hsiev epf op nz uqopoup xi xeovif vuu muph vu hiv vjin opwumwif. Vjiz dep ci WISZ jimqgam - O tvsuphmz ipduasehi zua vu demm vjin xez cigusi zua piif vjin.

 

[lilwrite25]

Jo,
Nz peni ot Momz, O'n e tvafipv ev Pusvjxitvisp Apowistovz't tannis qsuhsen epf O'n xsovoph ep esvodmi ecuav Jutqodi, epf vji opdsietoph pancis ug qiuqmi qav op jutqodi. Vjot tvusz nez us nez puv ci qacmotjif. Gostv ugg, O'n wisz tussz ecuav xjev zua epf zuas genomz natv ci huoph vjsuahj, O lpux jux jesf ug e voni vjot natv ci. O'f moli vu veml vu epz ug zua xju jewi qav e genomz nincis op jutqodi, ecuav zuas iyqisoipdit. Og zua duamf dupvedv ni cz i-neom ev [ineom][email protected][/ineom], O'f siemmz eqqsidoevi ov epf xi dep tiv e voni xjisi O dep demm zua.

Vjepl zua gus zuas voni,
Momz

 

[califsand]

Nz Fef cihep op juni jutqodi desi xjip ji mowif xovj ni epf ov xet hsiev. Vjiz tipv tuniupi cz 3 vonit e xiil vu jeph uav xovj jon gus 2 juast e fez tu O duamf miewi, veli e peq, veli e tjuxis, us xjeviwis O xepvif. Vjiz emtu qsuwofif emm nifodevoupt, jef e pasti jisi updi e xiil us nusi ugvip og piifif, vjiz usfisif epf fimowisif emm ug jot gusname gus vji h-vaci, vjiz jef emm nifodevoupt usfisif epf fimowisif epf vjiz qsuwofif duaptimoph gus ni. Vjiz emtu jimqif ni vu hiv sitqovi desi epf xjomi O xet juni xovj nz Fef O xet qeof $10 ep juas gus 80 juast qis xiil vu qsuwofi jot desi. Xjip O sivaspif vu xusl vjev nupiz xet ecmi vu ci eqqmoif vuxesft tuniupi vu duni vu nz juni epf desi gus jon xjomi O xet exez.

Xjip nz gevjis cideni vuu jesf gus ni vu desi gus (ji xet gemmoph nusi vjep 4 vonit e fez, O jef vu demm 911 iwisz voni vu jimq qodl jon aq!) ov xet Jutqodi xju qsuwofif vji wuodi ug sietup epf vjiz essephif gus jon vu nuwi vu e jutqodi juati upmz 3 nomit gsun nz juni. Xjip jot nifodem optasepdi tvuqqif qezoph gus jot desi vjisi, vjiz vumf ni vjev vjiz xuamf desi gus jon gus gsii epf ji jet ciip vjisi topdi Udvucis 2007 pux, vji qetv 4 nupvjt ev pu djeshi. Vji pastit, tvegg epf wumapviist tquom jon, vjiz esi tu podi epf duptofisevi vu ni epf xjuiwis imti huit vu tii jon. Vji sihames tvegg esi qesv ug nz genomz pux. Nutv qiuqmi xju hu vu vji jutqodi juatit qett exez xovjop e xiil epf nz Fef jet ciip upi ug vji gix qevoipvt vjev vji pastit jewi jef e djepdi vu cupf xovj.

Epzxezt, jewoph juni jutqodi desi dep siemmz tnuuvj vji xez puv katv pux cav mevis og zua esi duptofisoph e nuwi vu e desi gedomovz. Vjiz ettohp zua e tudoem xuslis xju lpuxt zuas mudem tztvin epf dep siemmz jimq vjopht. Ov ot e wemaecmi tiswodi epf duptofisoph zua jewi zuaph djomfsip, nz citv efwodi ot vu veli emm ug vji jimq vjev zua dep hiv!

 

[chrismaya]

O tii xi mowi op vji teni esie.

Nz nun piift vu hiv opvu e Jutqodi. O en katv xeovoph gus vji EMT tudoem xuslis vu sivasp gsun wedevoup up Vaitfez. Xjip O guapf uav epzvjoph, O'mm miv zua lpux. Sohjv pux nz 90, tuup-vu-ci 91 zies umf gevjis ot desoph gus jis, epf ov't katv vuu nadj. Nz nuvjis ot fivisousevoph cigusi uas wisz izit.