Status
Not open for further replies.

Natascha77

New member
Joined
Jan 28, 2019
Messages
4
Reason
PALS
Diagnosis
12/2016
Country
GER
State
Deutschland
Hello everyone,
I wanted to introduce myself ...
My name is Natascha, I am 41 years old
and mother of two children. In 12/2000 ALS was diagnosed. Since the course at
I am very slow, I am the second opinion in 04/2018 in another ALS
special clinic. Unfortunately, the ALS was also confirmed there, but with a very slow course. At the moment I notice a worsening, running is very difficult for me. Despite tongue atrophy but I have no problems in this area. Lovely Greetings from germany. P. S. Sorry for my bad english .....
 

Katalin

Distinguished member
Joined
Sep 22, 2018
Messages
114
Reason
Lost a loved one
Diagnosis
05/2018
Country
CA
State
Ontario
Hello Natasha,

Sorry to hear about your situation, but welcome to the forum. There are a lot of lovely, experienced, helpful people here. Sending best wishes!

Kathy
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,741
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
If you were diagnosed in December 2016 and are still running or running up until recently, that’s amazing. Sorry to hear about the diagnosis, but I’m glad your progression is slow. Welcome to the forum.
 

Natascha77

New member
Joined
Jan 28, 2019
Messages
4
Reason
PALS
Diagnosis
12/2016
Country
GER
State
Deutschland
At the moment I suffer from hip and calf pain. Standing and trying to walk only aggravates these. Maybe someone has a tip that could help. Baclofen helps a little ..bye Natascha
 

Doglady

Distinguished member
Joined
Aug 6, 2018
Messages
129
Reason
PALS
Diagnosis
04/2018
Country
US
State
Minnesota
Hello Natasha-
Sorry that you are joining us here but welcome anyway. Please don’t worry about your English - it seems just fine! I’m glad your progress has been slow and hope there is good support for ALS in Germany and for you in your life. The people here are very knowledgeable and friendly. Best wishes!
 

Natascha77

New member
Joined
Jan 28, 2019
Messages
4
Reason
PALS
Diagnosis
12/2016
Country
GER
State
Deutschland
Thanks for the nice words. Yes the doctors care is very good in Germany. I got my diagnosis in one of the best clinics. Also, the second opinion I catch up in another clinic is good in the field. Thanks again for the warm welcome.
 

beauty4everyone

Distinguished member
Joined
Jul 5, 2018
Messages
160
Reason
PALS
Diagnosis
04/2018
Country
US
State
Ville
Status
Not open for further replies.
Top