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Hello, This is my first post here, and I hope to learn more about the members of this forum and about the potential signs of this terrible disease I'm a 30 years old Hispanic male living in the US. In July 3, 2016 I started having body-wide fasciculations; they were in very single muscle from...

Hello everyone, I too have read the stickies and have a question about my symptoms. I must say that muscular dystrophy runs strongly in my family and that while I, at 33, am still fairly young to have onset symptoms, obviously we are not ruling this out. I am awaiting gene testing for this...

I decided to write this message as I understand that my first post in the DIHALS section has caused some concern among some of our undiagnosed members. The purpose of this post is to clarify a few things and to explain why you should not compare your situations with mine. To begin with, at no...

Hi everyone. I would greatly appreciate your advice. Four months ago out of the blue, the index finger on my dominant hand started moving On its own. It started pulling outward towards my thumb. Only happened three times the first day and I wasn't very concerned. By the weekend I was having...

Hey guys, I'm posting this new thread because my old thread was closed, it's also been a month(and a a half) since the results of my tests. Sorry for asking your help again and I appreciate your hard work. My symptoms however are still progressing and it is worrying me a lot. The thing is, my...

Good morning, all... First of all, I do apologize for my somewhat lengthy disappearance from the forums. I was in a tailspin following that late April appointment at the ALSA Center of Excellence for a second opinion. At that initial second opinion meeting, the Director of that Center noted...

Hi Everyone.I am waiting to be seen hopefully in the not too distant future at our big Neuro centre in London (horrendous waiting list), as apparently I am a mystery:cry:. In the meantime, I am now noticing that both my legs are from knee down are changing shape. The shins have flattened out...

Hello, I'm a very early 30's female who has been having the following issues for around a year (some are newer some are older) but have had some mobility issues since 2009. The neurologist I saw was unable to give a diagnosis without scans, tests, etc (he has requested the tests) but said I...

Hi everyone: Just wanted to say hi and briefly introduce myself. I was diagnosed with ALS in January, 2016 after about a year and a half of symptoms. I knew something was seriously wrong for quite some time, but my 4th EMG sealed the deal (I posted a lengthy and rambling message in the DIHALS...

Hello, I've posted twice previously with some scary symptoms that I've been experiencing since June 2015. I'm a 34 year old male. I haven't had a day in the past 11 months where I'm not experiencing one or multiple of the following symptoms daily (sometimes all the symptoms throughout a given...