umn

  1. ShiftKicker

    Clinic Update

    Just sticking my clinic update here for those who have questions about pure UMN MND/PLS. This section of the forum has been relatively quiet these past few weeks, but perhaps this will prove a useful reference to someone. I had my ALS clinic check up yesterday. I had a list of things to discuss...
    • ShiftKicker
    • Thread
    • als breathing clinic clinical dihals emg fatigue hope information life mnd motor neuron disease night onset pls questions sleep stress symptoms test tests treatment umn update wanted
    • Replies: 42
    • Forum: Primary lateral sclerosis
  2. B

    Invasive mechannical ventilation

    Hi, I am new to the forum but not to MND. I have had MND since I was 21 years old, however my disease was an UMN only disease, unfortunately in the last 4 years it turned into UMN/LMN ALS. I had a very weird onset as it was respiratory onset from the beginning. The first two years I used regular...
    • Bob1985
    • Thread
    • als bipap bulbar financial fvc life mnd onset pressure problems respiratory respiratory onset scared support surgery trilogy umn weakness young
    • Replies: 2
    • Forum: General discussion about ALS/MND
  3. F

    Revised Diagnosis

    Good morning, all! Aside from a quick "Happy Birthday" message to Max a few months ago, the last post I recall is from when I received my "working diagnosis" of PLS in March of 2015. I have had continued follow-up with the Director of our local ALSA Clinic, including a repeat EMG in December...
    • FrJn
    • Thread
    • alsa clinic diagnosis emg information newbie pls progression questions second opinion umn
    • Replies: 6
    • Forum: Newly diagnosed
  4. C

    Does this sound like initial issues?

    Two months ago I started having random twitching (no weakness), mainly in my lower legs, and became concerned enough to schedule a neurology appointment. I had an EMG done in all four limbs about 2-3 weeks after the onset on the symptoms and he said that my EMG was completely normal. About a...
    • cer3223
    • Thread
    • als cramping cramps early emg emg? help! issues neurology onset please help stiffness symptoms test twitching umn weakness worried
    • Replies: 19
    • Forum: Could this be ALS?
  5. A

    Does this sound like MND?

    Hello everyone, Im 23 male, and a medical student from India graduating this year. It all started 3 years ago when i noticed my first symptom, twitches on the back thigh, and abnormal sideways tremor of index finger on both sides. I didn't notice any weakness, stiffness or hyperreflexia back...
    • ajmatt
    • Thread
    • als arm atrophy back emg fasciculations finger fingers helpful hours hyperreflexia medical medicine mnd muscles neurologist questions stiffness student symptom tremor twitches twitching umn weakness
    • Replies: 4
    • Forum: Could this be ALS?
  6. ShiftKicker

    Physiatrist?

    After my very disheartening and unproductive (I thought) physio appointment last week, where we couldn't work out how to get a stretch without setting off cramping, I had just about given up. Apparently the physio was not deterred and sent in a referral to a type of doctor I am not familiar...
  7. J

    Newly diagnosed and terrified

    Hi everyone, I am shaking whilst i type i'm afraid so apologies for my spelling and grammar in advance :cry: I received an initial diagnosis yesterday that i have MND and am being referred by by Neuro to a specialist with MND/ALS experience. I am male and 46 years old, my mother died of Bulbar...
    • JamesW
    • Thread
    • als back bulbar cry diagnosis dying early emg familial family family history fell finger mnd mnd/als newly diagnosed night pain psychology scared shaking stress symptoms test tests thumb tremor twitching umn weakness
    • Replies: 12
    • Forum: Newly diagnosed
  8. B

    IVIG Response?

    Hello all, My mother was recently diagnosed with ALS at a medical school hospital after having an initial diagnosis of MMN from her local neurologist. There was some evidence of conduction block in her first EMG, but the opinion from the doctor at the hospital said it didn't seem significant to...
    • Bmgilst
    • Thread
    • 2nd emg ability als arm back bed bedridden chair diagnosed diagnosis emg finger foot foot drop improvement ivig lift medical mmn neurologist physical therapy ring finger scared therapy thumb umn walker wanted weakness wheelchair
    • Replies: 8
    • Forum: General discussion about ALS/MND
  9. Buckhorn

    New member with many questions.

    Hello. My husband, aged 68, was officially diagnosed with sporadic, limb onset ALS on Dec. 3rd/2015. I have worked as a PTA (physical therapist's assistant) for 30 years, so unfortunately, as his symptoms evolved, I had my suspicions of what it could be. Looking back, his symptoms may have...
    • Buckhorn
    • Thread
    • als ankle back choke clinic death early emg fasciculations flu hours leg pain mnd muscle neurologist new member onset pain power progression respiratory slurred speech speech symptoms test umn weakness weight loss
    • Replies: 13
    • Forum: Newly diagnosed
  10. E

    Symptoms

    I would like to start off by saying I have read the stickies and I understand certain things but I would like to share what's going on with me...I have been twitching for a month now and three days ago it moved to my left eyelid. This is continuos in my body and eyelid. My hands are very...
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