umn

Hi everyone, first of all, english is not my native language so sorry if my words confuse you. So I have been diagnosed with a mild type of SMA for 7 years, since I was 16-17 year old. I do a check up once every 2 years, and the result is still SMA everytime. The disease first starts with my...

Hi guys, first out I was trying to post in my origin thread but think its closed? If not please let me know. Anyway - I wanted to give you an update about my symptoms and how it have progressed, and hopefully some of you will reply with something that is reassuring because I can't let it go...

This post is specific to those diagnosed with probable or definite PLS. I recently had yet another ALS clinic appointment. The neuro had a resident with them, so my exam was both longer and more thorough than usual- and conducted with running commentary for teaching purposes. I received my...

Hi Everyone-- Hopefully I'm posting this in the right place. About 6 years ago my father-- longtime academic, loving husband, stay-at-home dad, and just all-around exceptional human being-- started acting...weird... at times. "Insidious" is probably the best word to describe the onset. It...

Hi, I've had lots of neuro symptoms for years now, but the past year have been the first time I've actually had a neurologist that has seen some UMN and LMN signs. I've had fasiculations in my lower legs, I get parasthesias, I've had some trippings at times, I get tiredness in my legs at...

Hi everyone, need some advice/suggestions from the group. A little history, I first noticed symptoms in 2013 and after 3 years of doctors, tests and surgeries I was diagnosed Dec 2017 with UMN predominate ALS. We then found out in February of this year that we were expecting our 3rd child...

I simply cannot get too upset about my ALS. Could this be a mental problem? 1) People die everyday from hurricanes, accidents and horrible cancers. I am alive today, and I may be alive ten years from now. 2) None of my family have suffered from bad health, mental illness or accidents. I can't...

Hi to all, after 5 days stay in ALS clinik in Germany, I was finally diagnosed with bulbar onsen ALS with sensory involment... The professor told me that when the people are young there was more evidence of widespread muscle wasting in onset with sensory stuff.... I also have tongue wasting...

Hi, I'm Elisabeth and I'm not exactly new. I've been lurking this forum for a while now but this is only my third post :) As the title says I live in the beautiful west cost city of Gothenburg in thee kingdom of Sweden :smile: I'm 41 years old and was diagnosed with ALS a little over a year...

So my mum ( 52 years old) has been having a few weird symptoms that have been building up in the past few months (about 1 year). To start with about 1 year ago she started complaining that she had a lot of mucus on throat, and she had to clear her throat frequently. She complained about that to...