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Hello- Looking to hear from others with primarily UMN symptoms if they've tried steroids, and if they experienced reduction in spasticity/increase in energy. I'm still searching for something to help my fatigue. A year ago I had dental surgery and received 4 days' worth of dexamethasone for...

Hi! Recently diagnosed and new to the whole blog/forum thing! Looking for any advice or info from other people going through similar things. Thanks

I have recently been unable to exercise and stretch easily on my own. I began to get puffy legs and ankles, so I started seeing a massage therapist once weekly about 6 weeks ago, to great effect. The therapist is VERY gentle and only does passive rom and gentle manipulation to help increase...

As most of you know, I have UNM ALS and it is very slow progressing, again as most of you know one of the major symptoms of UMN ALS is spasticity. Well I have always had very bad spasticity, have a baclofen pump (385 micrograms day) works pretty well on my lower body, but does very little for my...

Hello- It was recommended by two of my doctors that I get another night time oxymetry test due to some issues I've been having (night time coughing, intercostal cramping, headaches). I don't believe it's breathing issues, but more likely minor GERD due to all the drugs I've been prescribed- but...

It is time for me to move from do I have als/mnd to another forum however I do not have a specific diagnosis as of yet, to explain which I am confident most or all of you will understand my 4 emg's and clinical exam cannot be denied. I went in November 18 th for a fourth emg it is always an...

Hot on the heels of the last visit in September, no changes since 2014, I was back at Sunnybrook today and I'm showing small changes, Still slow progressing but I'm starting to show UMN signs. I'm being ordered a lift chair. Wasn't expecting that so soon. More time with a physio. I was kind of...

Hello I am a 20 year old female. I began having body wide twitches about a week ago. I also felt weakness in my right leg when walking and I don't like putting pressure on that leg because it shakes and feels weak. The muscle itself also feels stiff when I am walking. I went to my GP who saw no...

Aside from my spasticity, my absolute main issue is soul destroying fatigue. Actually, I am at the stage where I could even handle increased spasticity if I had any sort of energy. I have tried increasing sleep, various dietary supplements, massive amounts of iv VitB, changing my diet, increased...

Hi there, I hope my questions are not too silly, I am just trying to wrap my brain around some things. To be fair, and honest, we do not have a diagnosis yet so maybe I should not even be posting here, please tell me if I need to leave. Our neuro has told us he is confident my husband is facing...