nutrition

I wanted to share some "sort of" good news with everyone. As with many of you mucus has been a real problem for me. I had a mucus induced coughing fit that was so bad Wednesday that it was evoking my gag reflex and made all the muscles under my ribs ache like a son of a b1tch. Unfortunately it...

My husband is still having bouts of nausea. We are certain it is caused by phlegm in his stomach, he has so much of it and he is unable to cough it up. He throws up globs of it. He uses a cough assist machine and suction machine and he's been using pineapple juice to thin the phlegm, but of...

The last year has been filled with many odd and unanswered things. I am into bodybuilding as a hobby. About 8 months ago I started noticing my form was off no matter how hard I tried I couldn't get the left side to match the right. Fast forward a few months, fatigued during normal activites, out...

Our close friends are fighting the same battle you are all fighting. My PALS friend is also fighting a battle with her CALS husband over nutrition and weight. At her PCP appointment this week, she found she's lost 21 pounds in the past three months. Additionally she was told she has diabetes...

What have you been told to eat or take? I have heard of the Deana Protocal. I had my first visit to the ALS Clinic at the University of South Florida last Friday. The dietitian didn't give me any information on what to eat or not eat, etc.

Hello all. I am wondering about other PALS' experiences with different types of diet, and how it seems to affect their progression of ALS, possibly both short- and long- term. I tend to pay a lot of attention to my body and how things affect me. What I've noticed so far is that too much wheat...

talked with the RT yesterday at the house bout husband's trilogy and what it all means. he said he was doing well on it. she asked me about a trache for him (he was in the shower) and I told her that I didn't know what he would say, but what my stance was on it. it made me get a little teary...

Hi everyone. I was wondering if anyone's had experience with someone who says they're full or not hungry? I know getting maximum calories is important and I'm concerned that if they don't eat on their own, they will need to start using the PEG tube. Would love to hear others' experiences. Thanks!

Hi all, First, I would like to send peace and love out to those of you coping with ALS. Personally, my uncle has been affected with motor neuron disease (currently has aspiration pneumonia). I am happy so many have been made aware of ALS/MND through the "Ice Bucket Challenge," even if not all...

We're at the end of mom's battle. She hasn't had food since Saturday, or fluids since Sunday, and very little of each. She's been in bed since Monday. Breathing is a bit labored but we're doing Morphine & Ativan q4h. Urine output less than 75cc today. Family is coming in to say goodbye and...