nutrition

I've been lurking for a while and enjoying all the input from everyone, and I figured I should probably say hi before I start replying to posts. :) I'm Fizz, I'm 24, and was diagnosed 2 years ago with a neuromuscular disease that everyone is somewhat confident (finally) is SMA. I've got a cool...

Will Medicare pay for formula for the feeds? Been paying out of pocket and it is getting expensive. I haven't been able to find any DME Providers here in WV that provide enteral nutrition. They are all equipment based. Vince

Hi, I've finally joined after lurking for a few months to get lots of useful information and inspiration. My husband Douglas was diagnosed with ALS in May 2015. His arms and hands were affected first and are now mostly useless. He's now having trouble swallowing and talking and had a PEG tube...

I have not experienced pain up until the last 3 months or so, my neck and shoulders have been really bothering me so the Dr ordered an MRI of my c spine and lower lumbar basically the results show mild degenerative changes and facet joints arthropathy lordosis mild signal loss and tarliv cysts...

Can anyone tell me about this? My MD son asked if I wanted this at some point. Seems to be more than a feeding tube. Did a search on this website and could find nothing about it! Just looking ahead. Going to attorney tomorrow to modify my health care directive. Thanks. Wendy

Steve went for his regular VA appt on Wednesday. Pft showed a breathing decline but he had maintained his weight. Pulmo concerned because his breathing has been pretty stable since February and Steve has noticed a difference. Steve has felt a lot more weakness in his legs and his feet slap...

It's been 8 days since my father has had any nutrition. After eating well for several days last week, he started not wanting anything including Ensure. He has a PEG tube but was always able to eat by mouth. We are currently putting small amounts of water with meds through the tube but the...

Good Evening All, I have been lurking on the forums for a few months now and thought Iwould introduce myself as one of the newer members. I was diagnosed at Mass General ALS clinic on June 3 2015 with PBP. My symptoms started in early Nov 2014 with slurring. For the next 7 months I had blood...

First of all, this sight has been very informative - thank you to everyone. I am a 32 year old male, health conscious and into fitness - at the same time, married, father of 2 little girls, very high stress job, suffer from anxiety and horrible low back pain for years from heavy lifting/loading...

I copied some statements (below) about life expectancy. Here’s what I think I know from the doctors and from helping my wife as she progressed: In ALS, death usually comes from impaired breathing, especially aspiration pneumonia due to swallowing problems. If the patient lives long enough...