nutrition

  1. rose

    A new book written by the relative of a PALS

    Hi everyone :) I'm posting this here in the General section, rather than in the PEG related area, because I want everyone to see it. Whether or not you, or your PALS have a tube, or plan to have a tube, I think it will interest you. The woman who wrote this recipe book lost her...
  2. M

    Pulling rank

    Here's my vent of the week... I find myself being sensitive to some things that in the past would not have bothered me. I don't know if it is the sleep deprivation, the worrying or whatnot, but listen to my story. My sister in law has been very supportive throughout my PALS illness. If...
  3. dkcarl62

    Sticky gummy mouth

    Hello all once again, I’m like the college student who never writes unless they need money. Well, I don’t need money, I need help. My ability to eat regular food has declined rapidly. I’m now on strictly pureed foods and smoothies. Water with ThickIt. Everything out of a straw. Pureed...
  4. K

    Tell me please

    Hi guys . I'm from Russia . Sorry for my English . Please tell me whether there is in ALS autonomic disorders . I read that in ALS, there is increasing sympathetic activity . I all started with the sudden tachycardia at night . Then a week later the foot cramp and then started everywhere...
  5. B

    Read the sticky, still concerned

    Hi, I'm a 34 y/o male. For about a year now, I've noticed I haven't been able to lift as much as I used to, despite good nutrition and consistent effort. About a month and a half ago, I started experiencing awful fatigue. About a month ago, my legs and arms started having awful tightness...
  6. W

    Rapid onset??

    I am not diagnosed ALS. In July I began having swallowing problems. Diagnosed esophageal motility disorder or unknown origin. I've lost 60 pounds to date. Very poor nutrition as I have a hard time getting anything down including liquids. Blood test achr for myasthenia Gravas was 0.0. 3 weeks ago...
  7. H

    Weight loss in ALS

    I recently visited my sister, who has had ALS since last December, and I was shocked at the progression over the two-month period since I last saw her. She can no longer walk or talk, her hands are clawed, and her dementia seems to be advancing, but her weight loss seemed especially alarming...
  8. B

    Nutritional concerns?

    Hello. My loved one is in the late stages of ALS, so she is dependent on her PEG tube for nutrition. We have been using ensure plus, usually 5 a day. She was drinking juice, but her throat is no longer allowing that. She has been having trouble with phlegm build up and nasal congestion. We...
  9. P

    the PEG and the pain and the right thing to do

    My mom went in to get her PEG today. She didn't really want it, but she said okay. I'm not really sure why. Actually, I know why. After being in denial for so long, she now will do mostly everything I suggest. It's a terrifying responsibility. I wanted her to get it because I am not ready for...
  10. KimT

    Blood Work Question

    I asked my doctor to order some blood tests before going on Lunasin. I was concerned about the high copper content and high iron content of the product. I also wanted to check my thyroid since I have Hashimoto's and thought I felt my TSH was low. I was very surprised at the results of the...
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