The CCALS topic for May. It looks like it is going to be about tube feeding - particularly Liquid Hope. It may be somewhat commercial but the concept of real food versus chemical formulas is something we talk about here a lot...
*after writing this, I see I am just regergitating all the symptoms I have been having and it lead to a long post. My intention is to let you know what ALL is going on when we all know there is probably just specific symptoms that I am focusing on for this forum.*
Thanks for reading this long...
My fiance' was diagnosed one week ago today! UGH! I am reading like crazy and realize I will have a medical degree soon! I sure need one to understand everything! Its difficult when what works for one doesn't work for another. How do we know what is right? When pALS are losing muscle how is...
Hello all, some of you may remember I made a post about a month ago concerning my symptoms. That thread is now closed but I will summarize everything here. My concern is that I have been having very concerning symptoms the past 2 months and I am worried about my health. I will break down...
advice
age
als
arm
back
bfs
brain
bulbar
diet
emg
frustrated
muscle
normal emg
nutrition
onset
pressure
problem
respiratory
shortness of breath
stress
symptoms
tests
twitches
twitching
weakness
worries
wrong
It has been such a busy time and I hadn't had a chance to post earlier.
He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...
avaps
brother
catheter
dad
diagnosed
diagnosis
dying
early
eyes
father
feeding
feeding tube
grace
hospice
life
morphine
music
night
nutrition
oil
pain
pneumonia
speech
story
tracheostomy
trilogy
ventilator
Long time appreciator of the resources of forums like this that provide means to help reduce the stress of new and foreign symptoms.
30 y/o male with no family history of ALS.
Pre August 2017: I may have had a twitch here or there that never bothered me. I remember at least in May of 2017 a...
abdomen
als
back
clinical
diagnosis
dying
family
family history
fasciculations
food
ignore
lift
mobility
muscle
muscle twitching
nutrition
problem
sleep
stress
symptoms
tongue
twitch
twitching
weakness
wrong
Hello,
My husband has just ended his clinical trial (he dropped out March 28th) for Pimozide. Apparently, he's not progressed in his right leg or arm since last September but has only slightly in his left leg, which is his drop foot leg. However, I am finding it harder and harder to believe...
advice
afo
arm
back
bed
cals
clinical
clinical trial
depressed
exhaustion
fell
foot
natural
night
nutrition
pals
progression
respiratory
scooter
supplements
test
trial
vacation
wanted
wheelchair
I have a feeding tube that I currently use for my meds. I see the day approaching where I will need to start using it for nutrition. What are the side effects? Will it be diarrhea after every feed? What formulas are best to reduce diarrhea? Ive heard of gravity feeding and a pump....HELP...
Hello, I just wanted to ask some questions, first I wanna say that I have worked out hard for about four years, I never really ate alot my nutrition wasn't great and I never drank alot of water and I sweat alot, well awhile back I developed a twitch in my left bicep and it was on and off, in May...
als
arm
back
confused
cramping
early
family
foot
ice
muscle
muscles
nutrition
questions
reflex
scared
shoulder
stiffness
symptoms
test
twitch
twitches
twitching
wanted