mmn

  1. B

    IVIG Response?

    Hello all, My mother was recently diagnosed with ALS at a medical school hospital after having an initial diagnosis of MMN from her local neurologist. There was some evidence of conduction block in her first EMG, but the opinion from the doctor at the hospital said it didn't seem significant to...
    • Bmgilst
    • Thread
    • 2nd emg ability als arm back bed bedridden chair diagnosed diagnosis emg finger foot foot drop improvement ivig lift medical mmn neurologist physical therapy ring finger scared therapy thumb umn walker wanted weakness wheelchair
    • Replies: 8
    • Forum: General discussion about ALS/MND
  2. WendyWooG

    Hello

    Hi everyone I hope I have started this in the correct place. I am 48, mum of two grown up daughters and have a 3 year old granddaughter. In Feb 2015 people were asking me why I was limping, I hadn't noticed, had no pain just couldn't go on tiptoe on right leg. I also was getting a bit...
    • WendyWooG
    • Thread
    • arm atrophy back brain chair chronic denervation denervation emg fibromyalgia hope immediately ivig mmn mri muscle neurologist pain pma riluzole second opinion shoulder symptoms tests treatment twitch wanted wrong
    • Replies: 8
    • Forum: Newly diagnosed
  3. N

    Hello everyone!

    Good afternoon everyone, I was diagnosed by ALS specialist at Mayo Clinic here in Jacksonville just after Xmas, I have limb onset ALS. I am 28 years old and have no family history, although my grandma did have dementia unkown if it was FTD or not. Symptoms started around 7-8 months ago or...
    • Nolesac
    • Thread
    • 2nd opinion age als arm clinic dementia diagnosed diagnosis family family history ftd helpful immune ivig mmn onset sad stress weakness work wrist
    • Replies: 47
    • Forum: Newly diagnosed
  4. L

    unsure

    Hello everybody Thank you for the possibility to ask spezific questions about my symptomes. I can t imagine what you are going through. Thank you for your time! Since 2013 strange symptomes startet on my dominant side of my body: dropping small things daily, shoulder sank down, beginning...
    • laureen
    • Thread
    • abdomen arm atrophy biopsy clean emg cramps emg finger footdrop mmn mnd muscle muscle biopsy problems progression questions shoulder slow progression tests thumb unsure weakness
    • Replies: 3
    • Forum: Could this be ALS?
  5. N

    ALS or MMN?

    Hello everyone, Been reading these forums for a month now ever since MND was brought up by my Neurologist. I wasn't sure which topic to post under i have had one DR here at Jax MAYO diagnose ALS, and the Neurologist i first started going to was leaning towards MMN ( i see him again on tuesday...
    • Nolesac
    • Thread
    • als anxiety arm atrophy brain cold cramping diagnose diagnosis fatigue finger immediately ivig life mmn mnd mri muscle neurologist pain reading shoulder symptoms thumb twitching unknown video wanted weakness wrist
    • Replies: 35
    • Forum: Could this be ALS?
  6. lgelb

    Resource Second opinions and first clinic visits

    Do you really have ALS? A diagnosis of ALS or any other motor neuron disease (PLS, PMA, PBP, MMN) is made “by exclusion” (no higher probability presents itself) and by published criteria, most critically symptoms and muscle/nerve tests. Doctors may legitimately differ on whether you have...
    • lgelb
    • Thread
    • als als clinics alsa atrophy bipap caregivers dementia diagnose diagnosis disability exercise eyes free hospice hours lung capacity medical mmn mobility mucus orthosis power research second opinion sleep speech suction symptoms tests weakness wheelchair wrong
    • Replies: 1
    • Forum: Resources
  7. Blondrea

    Third EMG, It's Official

    I am so sad. I was praying for MMN, but EMG yesterday indicated "no way." I knew it was a remote possibility, but having even a flicker of hope was so important. So I am wondering, what do we do now? I am so unsure. Do we travel the world? (Though I have to keep my job to support us.) Install...
  8. A

    Mmn

    Hey guys. The doctor just told me a few weeks ago that i have MMN and i started treatments last week. I was wondering, is there any way that i could have been misdiagnosed? Is it possible that i could have or could develop Als? Thank you
  9. Blondrea

    Copper Deficiency Test is Our Last Hope

    Hello. As some of you know, we got our second opinion, and it's not good. Our doctor is willing to do one more EMG/NCS to see if there is any conduction block (which didn't show up on the previous two tests) because we still hoping (against all odds) for MMN. He is also doing one final blood...
  10. J

    Are there any online groups for teenagers who have a parent with ALS?

    Hi, all. My husband was diagnosed with ALS last July. Actually, that depends on who you ask -- two ALS/MND specialists diagnosed ALS without question, but husband chose to go with the current neuro who is doing a trial of treatment for MMN. His disease was progressing very slowly, relatively...
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