mmn

  1. S

    New member with IVIG question

    Hi, My brother has just been diagnosed with ALS. We the family are devastated. He is young with a young family. He has been told he can start IVIG treatment next month. I see that many ALS sufferers on this forum have had IVIG, but my understanding is that it is not appropriate for ALS, but only...
  2. M

    Need some help Thank You

    Thank you for taking the time of reading this and replying with your knowledge. To start it was roughly 20 months ago I noticed a twitch in my left bicep didn't think much of it at the time I was working out and then my shoulder I have had pain in for some time started up again and I had a...
  3. WendyWooG

    Diagnosis now confirmed.

    Well I have been sitting with a probable diagnosis since September last year. I have been trialing Ivig for a possible MMN diagnosis. The Ivig hasn't been working and I am now showing upper motor neurone symptoms as well now so they have cancelled the last Ivig and confirmed the diagnosis as...
  4. Y

    Looking for Feedback

    Hello Everyone, I have been following the forums for sometime now and this is my first post. I will try my best to describe my symptoms and tests. Symptom onset: Lower back pain with tripping over feet (right foot). Lumbar MRI ordered (see below). (Lumbar did show some issues, but the...
  5. S

    MND - ALS or Another Type?

    Hello all, This may be a welcome break from the typical hypochondriac's posts on this part of the forum (and no offense to others posting, just trying to make light of my situation.) I come to you guys under incredibly sad circumstances. My dad (age 67) who I am very close with, was recently...
  6. J

    Referral in Northeast

    Hello, does anyone know of a doctor knowledgeable about MMN in the Northeast? I am from Rhode Island. Thank you
  7. J

    Don't believe I have ALS

    Hi, I am new to this forum. I was told last Wednesday that I have ALS but believe I have been misdiagnosed. My story. I began having spasms in my right hand of the ring finger and pinky finger in August 2014. At that time I did notice difficulty in walking but attributed it to the fact I had...
  8. WendyWooG

    Ivig how do I tell it's working?

    Hi I was initially diagnosed with mnd but as I was presenting with purely lower motor neurone symptoms my neuro felt there was a possibility of MMN. I have had a partial initial treatment of Ivig, they only got 3 of the 5 doses into to me as I had an allergic reaction and felt quite ill even...
  9. B

    Speed of Progression?

    Are there any cases of ALS that you guys know of that have been fatal within seven months of onset of symptoms? My mother was diagnosed with ALS formally on Monday, after initially having a diagnosis of multifocal motor neuropathy in early October. Her serious symptoms started in late August...
  10. C

    Does this sound like progression ?

    Firstly sorry for starting a new post it appears due to time my old one has closed and secondly sorry for posing again. At the start of January my neuro gave me a Diagnosis of MMN due to not being able to get any conduction from my arm in the NCS, he could not rule out MND - but did say it...
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