Hi,
My brother has just been diagnosed with ALS.
We the family are devastated. He is young with a young family.
He has been told he can start IVIG treatment next month.
I see that many ALS sufferers on this forum have had IVIG, but my understanding is that it is not appropriate for ALS, but only...
Thank you for taking the time of reading this and replying with your knowledge.
To start it was roughly 20 months ago I noticed a twitch in my left bicep didn't think much of it at the time I was working out and then my shoulder I have had pain in for some time started up again and I had a...
Well I have been sitting with a probable diagnosis since September last year. I have been trialing Ivig for a possible MMN diagnosis. The Ivig hasn't been working and I am now showing upper motor neurone symptoms as well now so they have cancelled the last Ivig and confirmed the diagnosis as...
Hello Everyone,
I have been following the forums for sometime now and this is my first post. I will try my best to describe my symptoms and tests.
Symptom onset: Lower back pain with tripping over feet (right foot). Lumbar MRI ordered (see below). (Lumbar did show some issues, but the...
advice
back
clinical
dad
denervation
emg
family
family history
foot
hyperreflexia
mmn
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pain
questions
running
shaking
symptoms
tests
tremor
wrong
Hello all,
This may be a welcome break from the typical hypochondriac's posts on this part of the forum (and no offense to others posting, just trying to make light of my situation.) I come to you guys under incredibly sad circumstances. My dad (age 67) who I am very close with, was recently...
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cramps
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fasciculations
hyperreflexia
mmn
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muscle weakness
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symptoms
testing
voice
weakness
Hi, I am new to this forum. I was told last Wednesday that I have ALS but believe I have been misdiagnosed. My story.
I began having spasms in my right hand of the ring finger and pinky finger in August 2014. At that time I did notice difficulty in walking but attributed it to the fact I had...
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als symptoms
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spasms
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work
Hi
I was initially diagnosed with mnd but as I was presenting with purely lower motor neurone symptoms my neuro felt there was a possibility of MMN.
I have had a partial initial treatment of Ivig, they only got 3 of the 5 doses into to me as I had an allergic reaction and felt quite ill even...
Are there any cases of ALS that you guys know of that have been fatal within seven months of onset of symptoms?
My mother was diagnosed with ALS formally on Monday, after initially having a diagnosis of multifocal motor neuropathy in early October. Her serious symptoms started in late August...
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Firstly sorry for starting a new post it appears due to time my old one has closed and secondly sorry for posing again.
At the start of January my neuro gave me a Diagnosis of MMN due to not being able to get any conduction from my arm in the NCS, he could not rule out MND - but did say it...