drugs

Hello I live in Australia and i started showing signs of MND when i was around 21 but it could of been earlier. When i was told i had a slight limp i didnt even notice so i could of been even 20 when i first started having problems. My MND first effected my right ankle then moved over to my left...

Dear Fellow ALS Patients, Friends and Family, I think we really have a chance here to make change within FDA and the pharmaceutical companies. The premise is this: we know ALS is a killer so why not put drugs in the hands of patients Now... If you agree with this premise, please click the...

My dad isn't much of a typist and has asked me to write a post for him. My mother (age 75) was diagnosed with bulbar onset in January 2011; her voice began showing signs in April 2010. She is now unable to speak and has had a PEG since June 2011. She is still able to get around without...

My mother was diagnosed a year ago with bulbar onset. She has refused to see an ALS specialist, continuing to see only the neurologist who diagnosed her. Even he has not suggested she see a specialist, which is very frustrating for me, as I have gleaned so much information from this forum, and...

Hello pals and cals...were you turned down for one of drug trial because you couldn't pass the breathing test, or were diagnosed for too long? Try this, what have you got to loose? The ALS- Treat Us Now! Steering committee) is initiating a Pilot 1 initiative to allow early access to...

I have no clue as to what percentage of the ALS population might benefit. But within a few months of diagnosis, my husband's neurologist (not from the ALS Clinic) prescribed Mestinon (the generic version), which is a drug for myasthenia gravis. He quoted a mentor of his as suggesting: why not...

Much to look forward to in the way of new treatments in 2012. Help speed the process of making them available. Please sign our petition.... and volunteer to help our 7 person Steering Committee.....many easy ways to help..an hour /week is all it takes.

Sequoia suggested and she is correct...see her suggestion and the 1500+ post she is referencing here below: Ed Ed this is great news 1500+ I just hope that everyone on this Forum will sign the petition. I sent a Christmas letter to all my contacts asking them to sign. But I see that not many...

Merry Christmas and Happy Holidays to all. Ted and I know 2012 will be the year we reach a tipping point...from ...there is no cure,... to many trials already showing Treatments that work...join us by signing our petition and volunteering to help, or recruiting someone to help. Our Mission...

To see why the Treat Us Now petition is so important read what Dr Apell says in this announcement that just came in from Google Alerts...all about Dexpramipexole, you may have already seen it, but a new one for me.. Neurology Today: Encouraging Phase 2 Results for Dexpramipexole for ALS Prompt...