edjohnson
Active member
- Joined
- Nov 18, 2011
- Messages
- 48
- Reason
- PALS
- Diagnosis
- 10/2011
- Country
- US
- State
- nc
- City
- emerald isle
Sequoia suggested and she is correct...see her suggestion and the 1500+ post she is referencing here below:
Ed
Ed this is great news 1500+ I just hope that everyone on this Forum will sign the petition. I sent a Christmas letter to all my contacts asking them to sign. But I see that not many folks are on this thread....perhaps you should change the thread title to ALS-Treat us Now!
Merry Christmas and Happy Holidays to all. Ted and I know 2012 will be the year we reach a tipping point...from ...there is no cure,... to many trials already showing Treatments that work...join us by signing our petition and volunteering to help, or recruiting someone to help.
Ted, Diane, and I and several other activist Treat Us Now folks....1500+ and counting.
Our Mission:
Mission statement:
As ALS patients and their caregivers, we are committed to acceelerated
access to treatments that will slow progression or provide a cure.
Goals:
1. To assure compassionate access for ALS patients to treatments that
have demonstrated in Phase II trials the ability to slow progression
or cure ALS.
2. To cooperate with all willing ALS stakeholders.
3. To assure that funds are made available to allow patients
compassionate access to treatments..
Ed
Ed this is great news 1500+ I just hope that everyone on this Forum will sign the petition. I sent a Christmas letter to all my contacts asking them to sign. But I see that not many folks are on this thread....perhaps you should change the thread title to ALS-Treat us Now!
Merry Christmas and Happy Holidays to all. Ted and I know 2012 will be the year we reach a tipping point...from ...there is no cure,... to many trials already showing Treatments that work...join us by signing our petition and volunteering to help, or recruiting someone to help.
Ted, Diane, and I and several other activist Treat Us Now folks....1500+ and counting.
Our Mission:
Mission statement:
As ALS patients and their caregivers, we are committed to acceelerated
access to treatments that will slow progression or provide a cure.
Goals:
1. To assure compassionate access for ALS patients to treatments that
have demonstrated in Phase II trials the ability to slow progression
or cure ALS.
2. To cooperate with all willing ALS stakeholders.
3. To assure that funds are made available to allow patients
compassionate access to treatments..
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