drugs

  1. C

    looking to speak with ALS patients, caregivers

    Hello forum, My name is Chantelle and I'm a researcher working on a documentary about global health and the pharmaceutical industry -- we are covering a number of topics in the film, such as access to medication, drug development, rare and neglected disease research, etc. I am hoping to get...
  2. C

    looking to speak with ALS patients, caregivers

    Hello forum, My name is Chantelle and I'm a researcher working on a documentary about global health and the pharmaceutical industry -- we are covering a number of topics in the film, such as access to medication, drug development, rare and neglected disease research, etc. I am hoping to get...
  3. cubcake

    WSJ article on off label drugs

    Dilemma: When 1 Drug Treats 2 Diseases - WSJ.com Hoping that this is a link to the article in today's Wall Street Journal concerning off label drug use.
  4. Sequoia

    Read this from beginning to end!

    ALS Everyday Living Sharing important news, views, resources and opinions from a person living everyday with Amyotrophic Lateral Sclerosis (ALS, Lou Gehrigs Disease). Thursday, November 10, 2011 Compassionate Use Drug Availability for ALS Patients Time to wade into the water on a...
  5. Sequoia

    Let's all ask Biogen to Treat Us Now!

    hello every body! I am amazed that the new treatment Dex. has been around for over 14 years! From phase I to now phase III which won't finish until next December. I am losing muscle in legs, arms, hands, effecting my swallowing, speech, and now breathing. We know how this goes, and it goes...
  6. O

    Are statin drugs harmful?

    This is a subject that has probably been kicked around before, but I can't find anything recent. I have read that some neuros believe people with ALS/PLS should not take statin drugs. Has anyone out there received this advice or experienced problems that coincide with taking statins for...
  7. Sequoia

    Which of the new treatments for ALS do you think is most effective?

    Hello folks. I am considering applying for compassionate early access to these new drugs: Dex, NP001, and CK....I need your opinion on which one seems to have the most effective slowing down of progression. If you are on any of these three, let me know about how it is working. Thanks pals and...
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