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edjohnson

Active member
Joined
Nov 18, 2011
Messages
49
Reason
PALS
Diagnosis
10/2011
Country
US
State
nc
City
emerald isle
Merry Christmas and Happy Holidays to all. Ted and I know 2012 will be the year we reach a tipping point...from ...there is no cure,... to many trials already showing Treatments that work...join us by signing our petition and volunteering to help, or recruiting someone to help.

Our Mission:
Mission statement:
As ALS patients and their caregivers, we are committed to acceelerated
access to treatments that will slow progression or provide a cure.

Goals:
1. To assure compassionate access for ALS patients to treatments that
have demonstrated in Phase II trials the ability to slow progression
or cure ALS.
2. To cooperate with all willing ALS stakeholders.
3. To assure that funds are made available to allow patients
compassionate access to treatments..
 

Sequoia

Senior member
Joined
Sep 19, 2010
Messages
846
Reason
PALS
Diagnosis
08/2010
Country
US
State
Washington
City
Seattle
Ed this is great news 1500+ I just hope that everyone on this Forum will sign the petition. I sent a Christmas letter to all my contacts asking them to sign. But I see that not many folks are on this thread....perhaps you should change the thread title to ALS-Treat us Now!
 

hjlindley

Senior member
Joined
Dec 1, 2011
Messages
760
Reason
PALS
Diagnosis
10/2011
Country
US
State
VA
City
Richmond
Done! Thanks for the post.
 
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