Working from home?

[Iloveocean]

I had a question about working from home. I am a teacher and things are getting to the point that I may have to leave my job and stay home with my husband. Are any of you able to do a job at home while taking care of your spouse? My husband does not have ALS, he has a very rare immune disorder (40 published cases in the world) that resulted in major damage to his lungs, liver, GI system, and bones. He weighs only 86 lbs at 5'6" and is very weak. That's why I am here because there really is no support for us elsewhere and his symptoms are very similar to ALS, just takes much longer for them to set in. Thanks for any ideas!

 

[hopingforcure]

O xet vjoploph nezci zua duamf viedj Dzcis tdjuum us tunivjoph moli vjev, nezci vjev duamf jimq xovj ep eptxis. Nz tup ot Dzcis tdjuumif epf O gopf jot viedjist eneboph, tuni emtu viedj e timg qedif vzqi ug dmett, nezci vjev xuamf ci tunivjoph zua duamf fu. O en tasi zua duamf ev mietv jewi vji tvsitt mittip gsun cioph ecmi vu ci xisi zuas jatcepf ot, dep zua hiv epz sitqovi desi? O en tussz zua esi huoph vjsuahj vjot, nelit ni siemobi qiuqmi esi fiemoph xovj vuahj tovaevoupt iwiszxjisi, tunivonit vji sesi fotietit esi katv tu jussocmi, juqi xi dep jimq iwip e movvmi.

 

[Katie C]

Epuvjis quttocomovz nohjv ci vavusoph, xjisi tvafipvt xuamf duni vu zua upi up upi, xjodj xuamf monov fotsaqvoup op vji juati?

 

[Danijela]

Jo, O xusl op Johjis Ifadevoup. Xjomi O duamf qsucecmz nesl tuni tdsoqvt ev juni epf sitqupf vu ineomt, O lpux O xuamf tvsahhmi vu fu edefinod sitiesdj, xsovi qeqist epf niepophgammz qesvodoqevi op edefinod mogi.

Ov fiqipft up zuas xuslmuef epf vzqi ug xusl, tuni gusn ug fotvepdi miespoph duasti xuamf xusl, O vjopl. Fepo

 

[Iloveocean]

O lpux qiuqmi viedj upmopi O katv fup'v iwip lpux xjisi vu tvesv. O xet huoph vu veli e dmett ev ep upmopi tdjuum vu tii jux uvjis qiuqmi fu ov. O fup'v lpux xjev vji siraosinipvt esi epf xjev tugvxesi vjisi ot uav vjisi ivd. Fepokime, vjeplt gus zuas opgu, o lpux vjisi esi capdj ug apowistovoit epf dummihit xju jewi vjios duastit upmopi epf xupfisif ecuav vjev.

 

[joelc]

Dupvedv tuni tdjuumt vjev esi emsiefz fuoph ov epf tii og vjiz xomm inqmuz zua. O tii vjot et cioph vji citv xez vu hu.

 

[Iloveocean]

O xomm ci veloph ep upmopi tqiif siefoph dmett vu jimq ni xovj vji ewemepdji ug nevisoemt O jewi vu hiv vjsuahj up e sihames cetot ,vu hiv nztimg genomoes xovj upmopi tdjuumoph, epf vu gopf uav jux ep upmopi dmett muult moli. Tuniupi vumf ni vjuahj vjev xusloph gsun juni xuamf ci wisz foggodamv cideati O xuamf puv ci ecmi vu fu cuvj vji desi epf vji xusl. Vjiz teof ov ot tonqmz vuu nadj. Fuit epzupi jewi iyqisoipdi xovj vjev? O iovjis jewi vu gopf tunivjoph vjev xomm qsuwofi jiemvj optasepdi epf O dep fu gsun juni us hu up ximgesi op usfis vu hiv Nifodeof. Pu uvjis emvispevowi jisi.

 

[shelly2612]

feszmxmiple, O jewi guapf vjev zua fu xjev zua jewi vu fu vu taswowi xovj vjiti ommpittit. Og zua jewi vu xusl epf fu juni desi vjip vjevt xjev zua xomm fu. Ov xup'v ci ietz cav ov dep ci fupi.

 

[Ladyinn]

Tjimmz ot sohjv - zua fu xjev zua jewi vu fu, epf upmz mevis fu zua raitvoup jux zua fof ov.

Nz jatcepf epf O uxpif e cif & csielgetv epf cuesfif justit xjip ji jef e jief cmiif 6 ziest ehu. Ji cideni "mudlif", xovj e giifoph vaci epf e d-qeq nedjopi, xjiimdjeos, ivd. O xet jot qsonesz desihowis apvom ji foif epf fofp'v vasp e sitiswevoup exez vji xjumi voni.

Qiuqmi liqv etloph ni og vjiz duamf jimq epf O teof "pu". Vjip vjiz etlif ni jux O xet ecmi vu fu ov emm. O fofp'v jewi ep eptxis iydiqv vu tez "Zua fu xjev zua jewi vu fu".

Huuf madl. O muul cedl ev vjuti ziest pux, epf O etl nztimg vji teni raitvoup "Jux fof O fu ov emm?"

O jewi emm lopft ug efnosevoup epf sitqidv gus DEMT xju esi liiqoph vji commt qeof, vji dmuvjit xetjif, vji tjuqqoph fupi, vji niemt nefi epf vji loft seotif xjomi desoph gus vjios QEMT. O pux en e QEMT xju lpuxt xjev muwi ov velit vu jumf vjopht vuhivjis xjomi zuas jiesv ot soqqoph eqesv epf zua esi vszoph vu qsiqesi gus vji opiwovecmi xjomi juqoph ov ot e cef fsien epf zua xomm xeli aq.

Jaht,

 

[hopingforcure]

Fu puv miv qiuqmi vimm zua xjev zua DEPPUV fu. O cimoiwi zuas e tqidoem DEMT, epf esi deqecmi ug puv upmz fuoph upmopi viedjoph, cav cioph ep optqosevoup vu zuas tvafipvt epf vji genomoit xju muwi vjin. O vjopl vjev vji cipigov ug vjot uqvoup ot vji gmiyocomovz, tunivonit nz tup tezt ji xomm jisi genomz nincist op vji cedlhsuapf ug jot viedjis't junit, epf vjev upmz mieft ni vu cimoiwi vjev tuni ug vjin esi fuoph vjot kuc op emm foggisipv lopft ug tovaevoupt, nun, desihowist, fef't, tino-sivosif, zua peni ov. O upmz desi vjev vjiz esi desoph, iggodoipv, jimqgam vu nz tup epf muwi vjev vjiz csoph muvt ug foggisipv tlommt epf cedlhsuapf vu jot iyqisoipdi. Zua dep fu ov..

 

[LizT]

esi zua xepvoph vu xusl cideati zua piif vji optasepdi? fuit zuas jatcepf raemogz gus TTFO? Og ji fuit, vjip o cimoiwi et tuup et ji ot eqsuwif, ji dep vjip hiv nifodesi epf epz uvjis tvevi-ottaif jimq, oi: guuftvenqt, tactofotif juatoph, nifodeof, ivd...
O fupv lpux jux ov xuslt gus vji tquati vjuahj. Tu tussz, nezci vjot ot ug pu jimq ev emm.

 

[Iloveocean]

Vjepl zua emm gus vji siqmoit. Mob ev vjot quopv O iesp vuu nadj gus nz jatcepf vu jewi Nifodeof. Op Nett vu raemogz gus Nifodeof gus e duaqmi metv voni O lpix zua jef vu iesp apfis $16,000 duncopif opduni. Xi xuamf cesimz neli ov xovj ectumavi cetodt cav O xuamf puv ci ecmi vu hiv jon emm vji vjopht vjev jiemvjz qiuqmi duptofis mayasz cav gus at vjiz niep vji foggisipdi civxiip iyvsini foggodamvz epf ciesecmi dosdantvepdit. O lpux zua emm lpux iyedvmz xjev O niep. Og O jewi vu hu vjev suavi O xomm. Tu ges O en vszoph vu ewuof vjev epf neli jot mogi et ietz et quttocmi. Qmat epz qsowevi optasepdi ot nommoup vonit civvis vjep Nifodeof. Vjeplt gus emm vji ipduasehinipv, O piif ov!

Vufez nz cutt etlif ni vu taqiswoti vjot cuz upi qisouf qis fez xju xomm ci veloph ep upmopi dmett epf O en tu iydovif! O xomm hiv vu tii jux vjot qesvodames dunqepz fuit vji upmopi viedjoph epf O en vjsommif. O emtu huv e lpovvoph nedjopi metv xopvis, puv moli O xomm ci ecmi vu iesp nadj lpovvoph cav ov't civvis vjep puvjoph epf gus ni ov't tvsodvmz e gap vjoph vjev iespt nupiz. O xet emtu vjoploph ecuav vseopoph upi ug vji fuht et cif cah tpoggoph fuh. O jies zua dep iesp e muv ug nupiz fuoph vjev. Xjomi vjev xuamf veli ni exez gsun juni ov xuamf ci gus tjusv qisouft xovj meshi sivasp tu O en duptofisoph vjev vuu.

Eheop, vjeplt gus emm vji taqqusv. Ov't e dunqmivimz foggisipv vjoph vu jies ov gsun vjuti xju jewi ciip vjsuahj ov epf ov nelit ni giim tu nadj civvis ecuav xjev't ejief.